1http://dx.doi.org/10.20396/bjos.v19i0.8658591 Volume 19 2020 e208591 Original Article 1 Graduate Program in Dentistry, Federal University of Pelotas (UFPel), Pelotas, RS, Brazil. 2 Graduate Program in Dentistry, Catolic University of Pelotas (UCPel), Pelotas, RS, Brazil. Corresponding author: Catarina Borges da Fonseca Cumerlato, DDS, MSC; Graduate Program in Dentistry, Federal University of Pelotas Rua Gonçalves Chaves 457, 96015-560, Pelotas-RS, Brazil Tel./Fax: +55-53-3222.6690 E-mail: catarinacumerlato@hotmail.com Received: March 04, 2020 Accepted: July 11, 2020 #Dentalpain: what do the brazilian Instagram® users want to mean? Catarina Borges da Fonseca Cumerlato1,* , Rodrigo Nunes Rotta2 , Luísa Jardim Corrêa de Oliveira2 , Marcos Britto Corrêa1 Aim: The aim of this study was to evaluate what brazilian Instagram® users manifest when they use #dordedente (#dentalpain in portuguese). Methods: The content of 1,000 publications related to dental pain was evaluated. Through print screens posts were collected in two periods (2015 and 2020) and organized into files. Variables related to characteristics of users, publication’s type, cause of pain, impact on daily life and actions take to relieve pain were collected. Data analysis was realized through the qualitative methodology of conventional content analysis and a descriptive analysis (95% CI) was performed. Results: In the first assessment period 76% of the posts referred to self-declaration of pain. Regarding to the users’ characteristics, 54% were female, 20.4% male, and the remaining 25.6% were clinic/ company profiles, or it was not possible to identify the user’s gender. Apparently, 34.4% of users were adults, 18.6% were adolescents and only 1.2% were children. On the other hand, in the second evaluation the vast majority (99.6%) were clinic/company profiles. In addition, 90.2% were informative posts and only 3 posts (0.6%) were related to self-declaration of pain. Conclusions: The social network Instagram® serves as an efficient means of communication for informative and advertising purposes being an interesting alternative for the dissemination of health information, and as an instrument of health surveillance. Keywords: Dentistry. Pain. Quality of life. Social media. Toothache. https://orcid.org/0000-0001-5943-6958 https://orcid.org/0000-0003-0401-1543 https://orcid.org/0000-0001-7738-4338 https://orcid.org/0000-0002-1797-3541 2 Cumerlato et al. Introduction Social networks are social structures that can be formed by people, companies, or organizations, connected to each other, in order to exchange common values, experi- ences and information through horizontal and non-hierarchical relationships among the participants. In Brazil, according to the We Are Social study, there were 139.1 mil- lion internet users in 2017 (66% of the brazilian population), of which 122 million have profiles in social networks1. A recent research realized in 2019 has shown that the number of internet users in Bra- zil has grown to 149.1 million and the number of active social media users has also grown to 140 million, demonstrating a exponential increase of social media users in the last few years2. According to literature the most common acute manifestation of orofacial pain is odontalgia or toothache, a stressful and intensely painful experience, often leading to absences from school or work, affecting quality of life, being considered as an important public health problem3,4. A research performed in Twitter® demonstrated that social net- works are used by users to communicate experiences of dental pain, including actions taken to relieve pain and impact on daily life5, suggesting that social networks can be an interesting instrument for behaviors analysis and dissemination of health information. Instagram® is a social media that allows users to share photos and videos online to their followers, and at the same time enables the use of hashtags. This social media was created in October 2010 and since April 2012 is part of Facebook®6. A recent research has shown that Facebook® monthly active users is declining in some demo- graphics, in contrast, Instagram® users who visit the platform daily are growing rapidly since 20167. This mobile social network had reached 1 billion monthly active users in 2020, up from 800 million in January of 20188,9. As a relatively new social network, no study analyzed aspects related to toothache man- ifested by it users. In this sense, the aim of this study was to evaluate what brazilian Instagram® users manifest when they use #dordedente (#dentalpain in portuguese). Material and Methods We evaluated the content of a sample of 1,000 publications related to dental pain utilizing publically available data from Instagram®. In order to carry out the search and reduce the “algorithmic bias” which is nothing more than a term used to describe how we may be influenced by recommendations based on our personal data on the internet10, we created a profile on the network totally empty and without any connection with another user. Research was carried out in two assessment periods. The first was realized on July 3, 2015 at 6:00 pm, where were collected the 500 most recent posts containing “#dordedente”, which means dental pain in portuguese, through print screens for fur- ther review of their content. The second assessment also collected the 500 most recent publications containing “#dordedente” and it was performed on June 23, 2020 at 6:00 pm. The images were recorded and organized into ten files, each file contain- ing 100 posts, in order to facilitate their analysis. 3 Cumerlato et al. The first part of our data analysis was performed through the qualitative methodology of conventional content analysis, which is one of the methods used to analyze text data and that is used generally with a study design who aims to describe and interpret a phenomenon as emotional reactions. In this method, the study starts with an obser- vation of the content that we have collected and coding categories are defined during the data analysis11,12. As the social network Instagram® does not provide the characteristics of users, infor- mation such as sex and age were recorded according to the appearance of people in photographs (when possible). The variable age was categorized as adult, adolescent, child, and others (company or clinic profiles, or when it was not possible to identify). And the variable sex was categorized as male, female and others (company or clinic profiles, or when it was not possible to identify). Cause of pain, impact on daily life, and action taken to relieve pain were considered when they were explicitly declared by the user through the photo or subtitle. The variable pain´s cause was categorized as third molar, orthodontic appliance, caries, trauma, infection, and dental eruption. Impact on daily life was categorized as impact- ing feeding, sleep, leisure, study, and family. And if the user has taken an action to relieve pain, this action was categorized as going to the dentist, taking medications, and resting. Feelings about pain were interpreted through images, statements and emojis, which are specific figures of characters used in social networks. These feel- ings was categorized as sadness, resignation, faith, irritation, irony, and happiness. The data of interest were collected and organized into a database created in software Excel, so that the posts could be classified into categories according to their content through the conventional content analysis method. In addition, a descriptive analysis was performed to verify the relative and absolute frequencies of the information and 95% confidence intervals using the software Stata 12.0. Results Until the date of the first search, there was 6,101 publications related to the term #dordedente on Instagram®. In the second assessment, which was realized in 2020, the number of posts sharply increased to 40,500 (Figure 1). Figure 1. Flowchart of the publications included. 2015 assessment Publications on the Instagram related to #dentalpain (n = 6,101) Posts evaluated (n = 500) 2020 assessment Publications on the Instagram related to #dentalpain (n = 40,500) Posts evaluated (n = 500) 4 Cumerlato et al. From the 500 analyzed posts in 2015, 76% referred to self-declaration of pain, where the user usually published a photo of him/her in which one could notice through the physiognomy of the person feelings. In addition, the text that followed just below the picture describing the photo often made explicit the annoyance that the dental pain causes and how much it affects the daily routine of people. Figure 2 illustrates chang- ing of type of posts on five-year period. In 2015, more than 80% of posts were classi- fied as personal, while in 2020 90.2% of posts were informative. Table 1 presents the descriptive analysis of the variables sex, age, self-declaration of pain, and declaration of pain’s cause, collected from the publications. In the first assess- ment, 54% were female, 20.4% male, and the remaining 25.6% were clinic/ company profiles, or it was not possible to identify the user’s gender. Apparently, 34.4% of users were adults, 18.6% were adolescents and only 1.2% were children. On the other hand, in the second evaluation the vast majority (99.6%) were clinic/company profiles. In addition, from the personal profiles we could identify that two of them were posted by adult women (0.4%). In 2015, only 70 users have reported the cause of their pain, being the most fre- quent reason related to third molars (67%), followed by the use of orthodontic appliances (20%). The eruption of third molars was perceived through the pictures and subtitles that contained hashtags like “#wisdomtooth #thirdmolar #wisdom #wisdomteeth”. About orthodontic appliances some users made explicit the pain through phrases like “The thing was so tense that the mouth guard tore with the orthodontic appliance!”, and “Enough of hiding the smile and orthodontic appli- ance, toothache!”. Figure 2. Type of posts containing #dordedente on Instagram® by year of analysis. 17.2 82.8 2015 90.2 9.8 2020 Informative Personal 100 90 80 70 60 50 40 30 20 10 0 5 Cumerlato et al. Table 1. Descriptive analysis of the variables sex, age, self-declaration of pain, and declaration of pain’s cause, collected from the 1,000 posts evaluated that contained the term #dordedente in the social network Instagram® by year of analysis. Variable/category 2015 2020 n % 95% CI n % 95% CI Sex (1,000) Male 102 20.4 17.0-24.2 0 0 0.0-0.1 Female 270 54.0 49.5-58.4 2 0.4 0.2-0.6 Others 128 25.6 21.8-29.7 498 99.6 98.6-99.9 Age (1,000) Child 6 1.2 0.4-2.6 0 0 0.0-0.1 Adolescent 93 18.6 15.3-22.3 0 0 0.0-0.1 Adult 172 34.4 30.2-38.7 2 0.4 0.2-0.6 Others 229 45.8 41.4-50.3 498 99.6 98.6-99.9 Self-declaration of pain (1,000) Yes 380 76.0 72.0-79.7 3 0.6 0.4-0.8 No 120 24.0 20.3-28.0 497 99.4 98.3-99.9 Declaration of pain’s cause (1,000) Yes 70 14.0 11.1-17.4 0 0 0.0-0.1 No 430 86.0 82.6-88.9 500 100.0 99.9-100 Pain’s cause (70) Third molar 47 67.0 54.9-77.9 0 0 0.0-0.1 Orthodontic appliance 14 20.0 11.4-31.3 0 0 0.0-0.1 Caries 1 1.5 0.03-7.7 0 0 0.0-0.1 Trauma 1 1.5 0.03-7.7 0 0 0.0-0.1 Infection 3 4.3 0.9-12.0 0 0 0.0-0.1 Dental eruption 4 5.7 1.6-14.0 0 0 0.0-0.1 Table 2 presents the descriptive analysis of the variables related to impact on daily life, action taken to relieve pain, and feelings about pain. From the total analyzed posts, 8.7% of the users manifested some impact of dental pain on their daily routine, where feeding (46%), sleep (26.4%) and leisure (19.5%) were the predominant factors. The impact on feeding was manifested mainly through images of special foods like soups and creams, and was perceived also through sentences like “I cannot chew anything… so soup of potato and carrot made by Mom!”. There were also sentences that showed the impact on sleep and leisure time, for example:” From the series I hate my wisdom tooth, I want to sleep and I cannot!”, and “Starting the holiday at home with style!”. From the total of 1,000 publications, 10.3% of users reported having taken some measure to get around the pain such as going to the dentist (48%), resting (42%) and taking medications (38%). We identified these actions mainly by images of med- icines, dental clinics and people resting, and through sentences like “Let’s go to the dentist!”, “At home lying down… Toothache.”, and “About my Friday, medicine and more medicine!”. 6 Cumerlato et al. In almost one third of the publications (26.1%) it was possible to observe the user’s feelings regarding toothache. The feeling of sadness was manifested in 46.7% of the posts, through photos of the users with a sad face, crying and no smiles and due to the use of crying emoticons in the subtitle. About the feeling of resignation, where the user was resigned to the pain appeared in 23.4% of the posts, by means of phrases like “Hey pain, I do not listen to you anymore.”, “A toast to the pains!”, and “And today was like this ... Weekend at home ... All that remains is to enjoy some music !!”. And 15.3% of people expressed a feeling of faith and hope in front of toothache, which was perceived by subtitle as “Even if I have no strength left, I will still praise you.”, “Thank you Jesus for everything.”, and “Luck was cast, the cards are on the table, focus, strength, faith and a single certainty!”. Table 2. Descriptive analysis of the variables related to impact on daily life, action taken to relieve pain, and feelings about pain, collected from the 1,000 publications containing the term #dordedente in the social network Instagram®. Variable/category (n) n % 95% CI Impact on daily life (1,000) Yes 87 8.7 7.0-10.6 No 913 91.3 89.4-93.0 Impact type (87) Feeding 40 46.0 35.2-57.0 Sleep 23 26.4 17.6-36.7 Leisure 17 19.5 11.8-29.4 Study 3 3.4 0.7-9.7 Family 4 4.6 1.3-11.4 Action taken to relieve pain (1,000) Yes 103 10.3 8.5-12.4 No 897 89.7 87.6-81.5 Type of action taken (128) Going to the dentist 48 46.7 36.7-56.7 Taking medications 38 36.9 27.6-47.0 Resting 42 40.8 31.2-50.9 Feelings about pain (1,000) Yes 261 26.1 23.4-28.9 No 739 73.9 71.1-76.6 Type of manifested fellings (261) Sadness 122 46.7 40.6-53.0 Resignation 61 23.4 18.4-29.0 Faith 40 15.3 11.2-20.3 Irritation 22 8.4 5.4-12.5 Irony 10 3.8 1.9-6.9 Happiness 6 2.3 0.8-4.9 7 Cumerlato et al. Discussion The present study was the first to analyze contents related to #dentalpain (#dor- dente) in the social network Instagram®. Our study found that brazilian users of Instagram® utilize this social media to express feelings/experiences of toothache, including the cause of pain, the impact of this pain on daily life and measures taken to get around the dental pain. Some findings about our research are similar to the results of a study realized in 2009, that found through telephone interviews that the most frequently reported impacts from dental pain on daily life of the participants are difficulty to eating, worry and disruptions in sleep3. Another similarity with this study is related with the measures taken to relieve pain by users. Both studies found that the users reported have used a medicine and/or have gone to the dentist to deal with pain. The association of toothache and its impacts in many aspects of normal function- ing and daily living – eating, drinking, sleeping, talking and socializing – is well docu- mented on literature, as well as the use of nonprescription medicine and home reme- dies for toothache pain relief13,14. These similarities demonstrate that the findings of a survey on Instagram® are corresponding with results of studies realized by traditional methods of search, suggesting that this social media could be used for surveillance proposes, with special interest for public health. Besides that, Instagram® serves as an efficient means of communication between the user and his followers, with informative and / or advertising purposes. Our results demonstrated that users also utilize the Instagram® social media in order to inform their followers about dentistry content with the purpose of advertising and publicity. One interesting result that should be highlighted and discussed is the drastic change in pattern of publications from 2015 to 2020. In 2015, 82.8% of posts were personal and mostly about declaration of pain. While in 2020 more than 90% of publications were informative for advertising purposes publicated by clinic/company profiles. In the recent digital transformation, social media has offered a social communication space with people in timely and cost-efficient way, resulting in an efficient manner to establish relationships with patients and do marketing15. In this sense, Instagram® plays an important role in dentistry and it has been extremely used by dentists with advertising purposes, which explains this great change in pattern of publications over time, where we have a lot more publications related to information and marketing than personal manifestations. Another aspect that could direct influenced the change over time is the big number of dentists in Brazil, with almost 350,000 professionals in 202016. This high number leads to a very competitive market, where professionals put their best efforts to attract patients for the private practice. Another research that has results corroborating with ours, was published in 2011 and evaluated the content of tweets relating to dental pain from Twitter5. They found that the majority of tweets analyzed were statements suggesting that the users were experiencing a toothache and the vast majority of these statements connoted some negative or even catastrophic association with the experience. An example of a tweet published by a user that express a negative and suffer experience is: “ugh!! my toothache is killing me!! PAIN GO AWAY!!”5. As well as in our study, where in 8 Cumerlato et al. more than half of the posts it was possible to observe the user’s feelings regarding toothache. The feeling of sadness was the most manifested in analyzed posts and resignation’s feeling was the second, reinforcing the relation of the experience of dental pain and negative impacts in the user’s quality of life expressed in different social networks. Other important and similar result to our study was the most fre- quent actions taken to relieve pain reported by the users of Twitter, that were going to the dentist, taking medications including analgesics and antibiotics, and seeking advice from the Twitter community5. These results suggest that social networks are not only efficient means of communication but also a good method to evaluate the activities that are being impacted and the measures that are being taken by the people in front of some situation, reinforcing the idea that they could be used as an instrument of health surveillance. In this same network, another study conducted in 2014, through the qualitative anal- ysis of posts related to orthodontics, demonstrated that online social networks can become a powerful complement to traditional sources of health information, and in addition, the study has shown that the users of the research use the Twitter® social network for the purpose of expression of feelings17. Given these findings, we can see that social networks can be beneficial and use- ful for both professionals and patients. The social network Instagram® has several advantages. First, is the abundance of real-time data. The use of real-time updates averts retrospective reports and creates greater accuracy and sensitivity in the measurement of behavioral responses to pain. Another advantage of Instagram® is that the users can access the network on smartphones or tablets, increasing the frequency of use and posting. Moreover, in the case of professionals of health, Ins- tagram® could be useful to disseminate health information, do marketing, and guide their followers how to face some kind of difficulty in the face of dental pain or any other health problem. Health surveillance actions which have as principle to observe and analyze the health situation of the population articulating themselves in a set of measures aimed to con- trol determinants, risks and damages to health18, could also be put into practice in social networks, where one could analyze in part the health situation and behaviors of the population and thus, to promote virtual actions aiming, besides controlling deter- minants, to disseminate health information. Dental caries is still a major health public problem in most countries, in which 60–90% of children and the vast majority of adults are affected19, being also considered one of the main causes of dental pain20,21. However, in our study the main responsible for pain were the third molar and the use of orthodontic appliances. Dental caries was one of the causative factors that appeared less frequently in the posts. This divergence of results can be explained by the individual socioeconomic char- acteristics of the users. The social determinants experienced throughout life are strongly associated with the occurrence of caries disease22,23. However, people who have access to smartphones and computers are people with greater purchasing power, having more access to information and knowledge, and consequently having a lower risk factors for the development of caries disease. On the other hand, the 9 Cumerlato et al. use of orthodontic appliances and third molar extraction involves the person hav- ing a higher purchasing power to access these treatments, and it may be for these reasons that these two factors appeared more frequently as causes of dental pain in our study. Another possible explanation for these findings could be related to the impressions that users would like to manifest to their followers. Social networking has become an increasingly efficient mean for people to exhibit themselves, mainly through the selfies, where the users tend to expose their “media identities” exalting perfect images of themselves and avoiding sharing those more modest24. In this way, pain related to third molar and orthodontic appliances could be interpreted as more socially accepted events, because are not associated with disease or lack of self-care and can be considered as unavoidable. On the other hand, causes of caries are well known by population, referring to absence of hygiene and diet rich in sugars, which denotes bad impressions of individuals. However, our study has some important limitations that have to be discussed. First, our research was carried out limiting the language to search only Portuguese posts affecting the representativeness of the study population and limiting the extrapolation of the results. On the other hand, Brazil is one of the countries in the world with the largest number of social media users and this must be taken into account2. Besides that, posts without the hashtag were not evaluated, so the manifestations about dental pain on Instagram® may have been underestimated. In relation to the use of social networks as an instrument of health surveillance is interesting, but we have to consider that not all users who feel pain will manifest it in the networks. This is also important in terms of interpretation and extrapolation of data. The use of social media and websurveys is dramatically growing in the recent time, being an accessible alternative to do research during pandemic of COVID-1925. Due to these limitations, is necessary that future studies be performed to determine the validity of Instagram® of a data source. In this study, we have shown that Instagram® users share online their experiences of toothache, involving the cause´s pain, feelings about the pain, and measures taken to relieve pain. In this way, the social network Instagram® serves as an efficient means of communication between the user and his followers. In addition, this social network is also used by dentists for informative and advertising purposes being an interesting alternative for the dissemination of health information, and as an instru- ment of health surveillance. Acknowledgements This study was financed in part by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - Brasil (CAPES) - Finance Code 001. References 1. We Are Social Ltd. New York: We Are Social; 2017 [cited 2018 May 9]. 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