id	author	title	date	pages	extension	mime	words	sentence	flesch	summary	cache	txt
bam-9610	Makarova, Ekaterina V; Krysanov, Ivan S; Valilyeva, Tatiana P; Vasiliev, Mikhail D; Zinchenko, Rena A	Evaluation of orphan diseases global burden	2021	8	.pdf	application/pdf	4891	233	51	Key Words: Orphan diseases; rare diseases; global disease time; disability; quality of life; DALY; QALY; HALE. Integrated work and information exchange with charitable foundations, who provide assistance for patients with orphan diseases and interaction with the subjects of Russian Federation, are essential for the targeted financing mechanism in patient with rare diseases.	cache/bam-9610.pdf	txt/bam-9610.txt