id	author	title	date	pages	extension	mime	words	sentence	flesch	summary	cache	txt
ihlr-22948	Francis, Leslie P.; Squires, Michael	Patient Registries and Their Governance: A Pilot Study and Recommendations	2019	23	.pdf	application/pdf	10012	533	43	Some of these organizations are non-profits but many others are for-profit corporations interested in using registry data to further their corporate goals. Other registries may acquire data without either the consent or the knowledge of the individuals from which registry data is drawn.	cache/ihlr-22948.pdf	txt/ihlr-22948.txt