id	domain	url
ihlr-22948	doi.org	http://doi.org/10.18060/3911.0054
ihlr-22948	www.ncbi.nlm.nih.gov	https://www.ncbi.nlm.nih.gov/books/nbk208643
ihlr-22948	perma.cc	https://perma.cc/93yq-a24y]
ihlr-22948	www.ncbi.nlm.nih.gov	https://www.ncbi.nlm.nih.gov/books/nbk208631/#ch2.s19
ihlr-22948	perma.cc	https://perma.cc/w5djfzwq]
ihlr-22948	www.nih.gov	https://www.nih.gov/health-information/nihclinical-research-trials-you/list-registries
ihlr-22948	perma.cc	https://perma.cc/525g-ytd6
ihlr-22948	patientregistry.ahrq.gov	https://patientregistry.ahrq.gov/about
ihlr-22948	perma.cc	https://perma.cc/5u3d-uudl]
ihlr-22948	www.hhs.gov	https://www.hhs.gov/ohrp/international/clinical-trial-registries/index.html#_edn2
ihlr-22948	perma.cc	https://perma.cc/p6an-pk3p]
ihlr-22948	doi.org	https://doi.org/10.1093/nar/gks1173
ihlr-22948	perma.cc	https://perma.cc/m664-x2l3
ihlr-22948	www.icor-initiative.org	http://www.icor-initiative.org
ihlr-22948	perma.cc	https://perma.cc/7j77-2u5g]
ihlr-22948	rarediseases.info.nih.gov	https://rarediseases.info.nih.gov/diseases/pages/31/faqsabout-rare-diseases
ihlr-22948	perma.cc	https://perma.cc/bs65-7x6e
ihlr-22948	ghr.nlm.nih.gov	https://ghr.nlm.nih.gov/condition
ihlr-22948	perma.cc	https://perma.cc/2al8-dh8a]
ihlr-22948	perma.cc	https://perma.cc
ihlr-22948	www.rarediseasesnetwork.org	https://www.rarediseasesnetwork.org/registry
ihlr-22948	perma.cc	https://perma.cc/j88e-5wez]
ihlr-22948	www.sanfordresearch.org	www.sanfordresearch.org/specialprograms
ihlr-22948	perma.cc	https://perma.cc/38rv-fj9e]
ihlr-22948	bos-foundation.org	http://bos-foundation.org/whatisbos
ihlr-22948	perma.cc	https://perma.cc/zkl6-x4vu]
ihlr-22948	rarediseases.org	https://rarediseases.org/for-patient-organizations/ways-partner/patient-registries/nordfda-natural-history-study-faq
ihlr-22948	perma.cc	https://perma.cc/cjg7-e93w]
ihlr-22948	rarediseases.org	https://rarediseases.org
ihlr-22948	perma.cc	https://perma.cc/bl3e-b8zg]
ihlr-22948	rarediseases.org	https://rarediseases.org/for-patients-and-families/information-resources/info-clinical-trials-andresearch-studies
ihlr-22948	perma.cc	https://perma.cc/v3ce-qv88]
ihlr-22948	events-support.com	https://events-support.com/documents/pariser.pdf
ihlr-22948	perma.cc	https://perma.cc
ihlr-22948	www.cff.org	https://www.cff.org/research/researcher-resources/patient-registry/2017-cystic-fibrosisfoundation-patient-registry-highlights.pdf
ihlr-22948	perma.cc	https://perma.cc/wlh2-ctgp]
ihlr-22948	www.nap.edu	https://www.nap.edu/read/13444/chapter/1#xvii
ihlr-22948	perma.cc	https://perma.cc/j4js-rmy6]
ihlr-22948	choir.stanford	https://choir.stanford
ihlr-22948	perma.cc	https://perma.cc/2qjd-854k]
ihlr-22948	www.ncbi.nlm.nih.gov	https://www.ncbi.nlm.nih.gov/pmc/articles/pmc4988911
ihlr-22948	perma.cc	https://perma.cc/c6sb-xsnf]
ihlr-22948	perma.cc	https://perma.cc/8mtb-s63d]
ihlr-22948	www.ajrr.net	http://www.ajrr.net
ihlr-22948	perma.cc	https://perma.cc/uq8y-ck46]
ihlr-22948	cvquality.acc.org	https://cvquality.acc.org/ncdr-home
ihlr-22948	perma.cc	https://perma.cc/clr7-qc8x]
ihlr-22948	www.cdc.gov	https://www.cdc.gov
ihlr-22948	perm.cc	https://perm.cc/nvm9-4jth
ihlr-22948	www.cdc.gov	https://www.cdc.gov/cancer/npcr/index.htm
ihlr-22948	perma.cc	https://perma.cc
ihlr-22948	www.cdc.gov	https://www.cdc.gov/ncbddd/birthdefects/states/index.html
ihlr-22948	perma.cc	https://perma.cc/d3wb3tut]
ihlr-22948	uofuhealth.utah.edu	https://uofuhealth.utah.edu
ihlr-22948	perma.cc	https://perma.cc/gxh2-kj3j]
ihlr-22948	perma.cc	https://perma.cc/v4bs-mpfy]
ihlr-22948	perma.cc	https://perma.cc/u5q9-kmmb]
ihlr-22948	health.utah.gov	https://health.utah.gov/cshcn
ihlr-22948	perma.cc	https://perma.cc/xd9w-m8de
ihlr-22948	www.cff.org	https://www.cff.org/research/researcherresources/patient-registry
ihlr-22948	perma.cc	https://perma.cc/5nj2-best]
ihlr-22948	perma.cc	https://perma.cc/y85v-zrky
ihlr-22948	www.sanfordresearch.org	www.sanfordresearch.org/specialprograms
ihlr-22948	perma.cc	https://perma.cc/5vva-gv5y]
ihlr-22948	perma.cc	https://perma.cc/dxs7-9n2t]
ihlr-22948	www.pharmexec.com	http://www.pharmexec.com/registries-and-future-medicine
ihlr-22948	perma.cc	https://perma.cc/6qxh-lsxn]
ihlr-22948	journals.plos.org	https://journals.plos.org/plosone/article?id=10.1371/journal.pone
ihlr-22948	perma.cc	https://perma.cc/5lca-h3ap]
ihlr-22948	clinicaltrials.gov	https://clinicaltrials.gov
ihlr-22948	perma.cc	https://perma.cc/3fqh-bp9s]
ihlr-22948	perma.cc	https://perma.cc/y68w-gpgr
ihlr-22948	perma.cc	https://perma.cc/9xup-nspc]
ihlr-22948	www.edf.org	https://www.edf.org/media/houston-partners-announce-launch-post-harveyhealth-registry
ihlr-22948	perma.cc	https://perma.cc/9yee-9kr4]
ihlr-22948	ncvhs.hhs.gov	https://ncvhs.hhs.gov/wpcontent/uploads/2014/05/100615p09.pdf
ihlr-22948	perma.cc	https://perma.cc/85ed-bclq]
ihlr-22948	www.projectdatasphere.org	https://www.projectdatasphere.org/projectdatasphere/html/resources/pdf/deidentification
ihlr-22948	perma.cc	https://perma.cc/5wj7-2rda]
ihlr-22948	www.healthit.gov	https://www.healthit.gov/sites/default/files/12072016_hipaa_and_public_
ihlr-22948	perma.cc	https://perma.cc/62ew-gsq3]
ihlr-22948	bobgellman.com	https://bobgellman.com/rg-docs/rg-fipshistory.pdf
ihlr-22948	perma.cc	https://perma.cc/j4mw-n6kg]
ihlr-22948	www.justice.gov	https://www.justice.gov/opcl/docs/rec-com-rights.pdf
ihlr-22948	perma.cc	https://perma.cc/29ku-s648]
ihlr-22948	www.oecd.org	http://www.oecd.org/sti/ieconomy
ihlr-22948	perma.cc	https://perma.cc/w2yv-xcaa]
ihlr-22948	www.healthit.gov	https://www.healthit.gov/topic/privacysecurity-and-hipaa/model-privacy-notice-mpn
ihlr-22948	perma.cc	https://perma.cc/wbz5-mm8h]
ihlr-22948	www.healthit.gov	https://www.healthit.gov/sites/default/files/2018modelprivacynotice.pdf
ihlr-22948	perma.cc	https://perma.cc/r9le-9d9n]
ihlr-22948	ncvhs.hhs.gov	https://ncvhs.hhs.gov/wp-content/uploads
ihlr-22948	perma.cc	https://perma.cc/ug2z-xwgt]