item: #1 of 109
          id: qrmh-10168
      author: Bareiss, Warren 
       title: Editorial
        date: 2021-10-05
       words: 1825
      flesch: 47
     summary: In that iterative spirit, I have taken the opportunity to read with deep appreciation the editorial that Dr. Bartesaghi provided for the first issue of QRMH (2017).2 In that brief essay, Dr. Bartesaghi provided the foundation for what it means to do qualitative research with respect to communication, health, and medicine: As many of you already know, qualitative research is not for the faint of heart. like anyone who has conducted qualitative research knows, our chosen method of scholarship is highly iterative.
    keywords: bartesaghi; healthcare; medicine; research
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        item: #2 of 109
          id: qrmh-10232
      author: Meluch, Andrea
       title: Psychosocial benefits of the social support experienced at a community-based cancer wellness organization
        date: 2022-01-31
       words: 7049
      flesch: 48
     summary: Social support has been examined through messages, interactions, and social networks.11 Further, researchers have noted that social support can be studied from a functional perspective, through network analysis, and/or through examinations of perceptions of available support.13 As such, the sources of the social sup- port individuals receive (e.g., from a family member or friend) are often examined by researchers interested in supportive communication to understand who provides social support. Social support and health Research continues to confirm the association between social support and both physiological and psychological health benefits.15,16
    keywords: benefits; cancer; community; experiences; mcwc; organization; participants; people; psychosocial; social; study; support; wellness
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        item: #3 of 109
          id: qrmh-10241
      author: Zingmark, Hans; Granberg-Axell, Anetth
       title: Near-death experiences and the change of worldview in survivors of sudden cardiac arrest: A phenomenological and hermeneutical study
        date: 2023-01-23
       words: 8911
      flesch: 63
     summary: In this study, however, we are particularly interested in understanding how the dominant themes found in participant interviews corre- spond with potentially sudden shifts in worldview re- sulting from changes in assumptions about reality (which, in turn, condition changes in values and atti- tudes) and how we might better understand those shifts as we engage with NDE patients. The focus of this study was to understand the meaning of NDE experiences to better be able to communicate with and treat patients who have had NDEs.
    keywords: bertil; body; death; experience; healthcare; life; ndes; participants; patients; research; study; sven
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        item: #4 of 109
          id: qrmh-10287
      author: Hughes, Luke; Anderton, Lisa; Taylor, Rachel
       title: Evaluation of the Family Liaison Officer role during the COVID-19 pandemic
        date: 2022-05-31
       words: 9903
      flesch: 56
     summary: Clinical FLOs were redeployed from healthcare roles (i.e., clinical nurse specialists and research nurses) and put emphasis on liais- ing with patients’ families, providing medical updates, and acting as a conduit between the medical team and the fam- ily unit. In particular, col- leagues of clinical FLOs found that having a consistent touch point for family communication was time efficient for both the families and the ward team alike, for example: It was very good for time efficiency […] to actually spend time phoning each family member […] was really quite time consuming, big time efficiency saver for us as doctors.
    keywords: care; clinical; colleagues; communication; families; family; flos; healthcare; pandemic; patients; research; role; staff; team; time; ward
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        item: #5 of 109
          id: qrmh-10296
      author: Fischer, Avital; Shapiro, Johanna; Nguyen, Tan; Meckler, Gabriela; Lam, Tien; Mai, Uyen; Fenning, Reece; De La Cruz, Jan Paolo; Haq, Cynthia
       title: Views from the trenches: California family physicians’ challenges and resilience factors while providing patient care during the initial wave of COVID-19
        date: 2022-10-04
       words: 11497
      flesch: 52
     summary: A systematic review of in- terventions to foster physician resilience. Tel.: 949-338-4640 E-mail: jfshapir@hs.uci.edu Key words: Family physicians; pandemics; COVID-19; burnout, professional; psychological distress; coping; psychological re- silience; positive motivation; professional quality of life.
    keywords: burnout; care; coping; covid-19; family; fps; health; healthcare; medicine; moral; new; pandemic; participants; patients; people; physicians; primary; research; resilience; stress; study; theory; work
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        item: #6 of 109
          id: qrmh-10386
      author: Bareiss, Warren
       title: Editorial
        date: 2022-01-31
       words: 1279
      flesch: 57
     summary: It occurs to me that if we are going to champion qualitative research, we should also take on the responsibility of welcoming and encouraging researchers who might be looking for some guidance in trying their hands at qualitative methodologies. And this brings us back to where we started, recog- nizing not only what stories reveal (or hide), but also the importance of narrative analysis in qualitative research.
    keywords: cancer; healthcare; qrmh; research
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        item: #7 of 109
          id: qrmh-10437
      author: Alvarez, Mike
       title: “Life is about trying to find a better place to live”: Discourses of dwelling in a pro-recovery suicide forum
        date: 2022-05-31
       words: 10126
      flesch: 58
     summary: For other SF users, it is not a sense of entrapment, but its dialectical opposite, the feeling of being unsettled, dis- placed, and without place that is the source of much an- guish. An- other SF user compares him/herself to a “giraffe in space…not sure how I got here and probably can’t get back to earth on my own.”
    keywords: article; communication; cultural; internet; life; meanings; members; new; place; research; self; space; study; suicidal; suicidality; suicide; users; world
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        item: #8 of 109
          id: qrmh-10438
      author: MacDougall, Arlene G.; Price, Elizabeth; Glen, Sarah; Wiener, Joshua C.; Kukan, Sahana; Powe, Laura; Bird, Richelle; Lysaker, Paul H.; Anderson, Kelly K.; Norman, Ross M.G.
       title: A pilot study of participatory video in early psychosis: Qualitative findings
        date: 2022-10-04
       words: 6823
      flesch: 54
     summary: This pilot study examined participants’ reactions to and experiences of participatory video as an intervention to help facilitate recovery-oriented narrative development in early psychosis. E-mail: arlene.macdougall@sjhc.london.on.ca Key words: Psychosis; early intervention; participatory video; nar- rative development; recovery.
    keywords: experiences; group; intervention; narrative; participants; participatory; people; process; project; psychosis; recovery; research; study; video
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        item: #9 of 109
          id: qrmh-10639
      author: Springer, Mellanie V.; Hodges, Tiffany; Lanning, Cristi; Tupper, Michael; Skolarus, Lesli E.
       title: Using qualitative data to inform the adaptation of a stroke preparedness health intervention
        date: 2023-01-23
       words: 6560
      flesch: 51
     summary: The pamphlet includes a definition of stroke, the consequences of stroke, an explanation of stroke symptoms, how to check for stroke symptoms, the importance of calling 911 when stroke symptoms start, and a description of stroke treatment. Randomized controlled trials of stroke pre- paredness interventions for Black Americans that teach stroke symptoms and the importance of activating emer- gency medical services (hereafter referred to as “calling 911”) are few in number and have occurred in settings such as schools and churches (Williams, et al., 2008; Williams, et al. 2019).
    keywords: 911; behavior; change; data; health; intervention; participants; research; stroke
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        item: #10 of 109
          id: qrmh-10654
      author: Bareiss, Warren
       title: Revealing and explaining deep structure via Qualitative Research in Medicine and Healthcare
        date: 2022-06-07
       words: 2133
      flesch: 52
     summary: And just as no two artists will make the exact same sculpture—because their experience, skills, and tools are different—so, too, differ- ent researchers can interpret the same situation, even the same data, in different ways. Given that the FLO role was developed on the spot during a crisis, Hughes, et al. use uncertainty reduction theory as a conceptual tool to reveal and explain how FLOs dealt with unpredictable cir- cumstances in different ways, depending on their respec- tive professional training.
    keywords: communication; healthcare; medicine; qrmh; research
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        item: #11 of 109
          id: qrmh-10717
      author: Tullis, Jillian A.
       title: Tumor talk: A descriptive study of communication about tumor board meetings
        date: 2022-10-04
       words: 6292
      flesch: 55
     summary: This study was a first step in describing communica- tion during tumor board meetings; however, the number of tumor boards and a single research site are limitations. While the literature is not definitive about the value and efficacy of tumor board, use of tumor boards persists.
    keywords: board; breast; cancer; care; communication; information; meetings; patient; research; study; treatment; tumor
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        item: #12 of 109
          id: qrmh-10823
      author: Vaughn, Rachel M.; Bagatell, Nancy; McGovern, Heather; Feinberg, Raiya; Hendry, Katherine; Chowdhury, Ramis; Cassidy, Jessica M.
       title: Politics, policies, and patient care: Rehabilitation therapists’ experiences during the COVID-19 pandemic
        date: 2023-04-27
       words: 8683
      flesch: 44
     summary: Some studies reported ele- vated anxiety, depression, and reduced morale across therapist participants (Hoel et al., 2021; Yang et al., 2020) . Therefore, the purpose of this study was to describe therapist experiences from working in acute and inpatient rehabilitation environments at a university-affiliated med- ical center in the Southeast region of the United States during the COVID-19 pandemic.
    keywords: covid-19; experiences; factors; family; healthcare; hospital; pandemic; participants; patients; qualitative; rehabilitation; research; study; therapists; work
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        item: #13 of 109
          id: qrmh-10837
      author: Clobes, Thomas A.; Alonge, Heather Craig
       title: Young Latina college students’ perspectives on mask-wearing post lifting of mask mandates
        date: 2023-04-27
       words: 6486
      flesch: 55
     summary: Follow-up questions regard- ing how they determined the time frame for discontinuing wearing masks suggested that participants had no consis- tent rationale. Study participants A purposive sample of twenty-two Latina students (ages 18 to 30) was interviewed for this study (Davis, et al., 2021).
    keywords: college; covid-19; health; masks; pandemic; participants; public; research; students; study; university; wearing
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        item: #14 of 109
          id: qrmh-10868
      author: Natale, Isabella; Harvey, Craig; Wood, Pene; Anderson, Karen
       title: It can save your life, that’s all I know. Barriers and facilitators for engagement in take-home naloxone for people receiving opioid substitution treatment in regional Australia: An explorative study
        date: 2023-07-19
       words: 6255
      flesch: 56
     summary: Through comments such as these, participants reflected about how they and other peers have a role in distributing THN to people who are not being reached by THN programs and are potentially at high risk of overdose, suggesting that peer distribution facilitates ac- cess to THN. Distribution via peers and syringe vending machines were suggested as ways to reduce barriers for people not wanting to engage with THN program staff. THN programs usually include overdose education detailing prevention strategies, how to identify and respond to opioid overdose including seeking help, and how to administer naloxone “It can save your life, that’s all I know,” barriers and facilitators for engagement in take-home naloxone for people receiving opioid substitution treatment in regional Australia: An explorative study Isabella Natale,1 Craig Harvey,1 Pene Wood,2
    keywords: australia; naloxone; opioid; ost; overdose; participants; people; programs; risk; thn
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        item: #15 of 109
          id: qrmh-10898
      author: Bareiss, Warren
       title: The practice of qualitative inquiry in illness narrative scholarship
        date: 2022-10-04
       words: 1603
      flesch: 54
     summary: Elaborating further, Kleinman argued that …to evaluate suffering requires more than the ad- dition of a few questions to a self-report form or a standardized interview; it can only emerge from an entirely different way of obtaining valid infor- mation from illness narratives. Paying attention to illness narratives is a means of getting up close to the illness experience.1
    keywords: analysis; healthcare; illness; narrative; stories
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        item: #16 of 109
          id: qrmh-10902
      author: Thiart, Marí; O’Connor, Megan; Müller, Jana; Holland, Nuhaa; Bantjies, Jason
       title: Operating in the margins: Women’s lived experience of training and working in orthopaedic surgery in South Africa
        date: 2023-04-27
       words: 10229
      flesch: 57
     summary: Women surgeons in Rwanda report similar challenges and attribute their de- cision to enter the speciality to role models, positive pa- tient encounters, and exposure to surgery (Yi et al., 2018). A qualitative study of 46 women sur- geons and trainees identified four types of bias faced by women surgeons: i) workplace factors such as access to parental leave and role models; ii) epistemic injustices (unfair assessments of women surgeons’ credibility by pa- tients and colleagues); iii) stereotyped expectations that they will carry out more of surgery’s “care work” such as meeting the emotional needs of patients, and iv) objecti- fication (Hutchison, 2020).
    keywords: experiences; gender; health; medical; medicine; orthopaedic; participants; research; study; surgeons; surgery; training; women; work
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        item: #17 of 109
          id: qrmh-11069
      author: Herr, Monika Shehi
       title: Review of Jan Doolittle Wilson’s Becoming Disabled: Forging a Disability View of the World (Lexington Books, 2021)
        date: 2023-01-23
       words: 3975
      flesch: 45
     summary: In the introduction, Wilson writes that she has tried to avoid “the trappings of the ‘typical’ memoir written by parents of children with disabilities, many of which have the tendency to reify rather than challenge op- pressive cultural models of disability” by emphasizing “grief over a child’s diagnosis” and framing their child’s disability “at least in part through a medicalized model” (p. 9). Layout 1 Jan Doolittle Wilson doesn’t invite as much as she com- pels the readers to do the uncomfortable, complicated, and necessary work of reimagining disability.
    keywords: book; chapter; disability; grandmother; people; wilson; zoey
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        item: #18 of 109
          id: qrmh-11170
      author: Bareiss, Warren
       title: Editorial Tips on Publishing Qualitative Research in Medicine & Healthcare
        date: 2023-01-23
       words: 1890
      flesch: 58
     summary: The most exciting part about qualitative Editorial Tips on Publishing Qualitative Research in Medicine & Healthcare Warren Bareiss, PhD Department of Fine Arts & Communication Studies, University of South Carolina Upstate, Spartanburg, South Carolina, USA Correspondence: Warren Bareiss, Department of Fine Arts & Com- munication Studies, University of South Carolina Upstate, Spar- tanburg, South Carolina, USA. E-mail: bareiss@uscupstate.edu Key words: Qualitative research; quotations; methodology. Qualitative research should be an adventure.
    keywords: authors; healthcare; readers; research
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        item: #19 of 109
          id: qrmh-11261
      author: Ricks, Damla; Brannon, Grace Ellen
       title: “It’s real. It’s a thing:” Mental health counselors’ listening exhaustion during COVID-19
        date: 2023-08-01
       words: 10286
      flesch: 52
     summary: Three themes were identified: i) topic related listen- ing-exhaustion, ii) number of daily client sessions and lack of breaks in between sessions, and iii) short- and long-term listening challenges. Results show how back-to-back, daily therapy sessions increased listening exhaustion levels and that counselors expe- rienced both long-term and short-term listening exhaustion when utilizing telehealth due to lack of nonverbal cues and other related factors pertaining to online delivery.
    keywords: burnout; client; counselors; covid-19; exhaustion; healthcare; listening; mhps; pandemic; participants; research; sessions; telehealth; therapy; time
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        item: #20 of 109
          id: qrmh-11429
      author: Bareiss, Warren
       title: Using qualitative research in the classroom
        date: 2023-04-27
       words: 1518
      flesch: 50
     summary: Editorial: Using qualitative research in the classroom Warren Bareiss Department of Fine Arts & Communication Studies, University of South Carolina Upstate, Spartanburg, South Carolina, USA Correspondence: Warren Bareiss, Department of Fine Arts & Com- munication Studies, University of South Carolina Upstate, Spar- tanburg, South Carolina, USA. E-mail: bareiss@uscupstate.edu Key words: Qualitative research; teaching; methodology. Not surpris- ingly, teaching qualitative research is my favorite part of the course, so I save it for the end.
    keywords: healthcare; medicine; participants; research
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        item: #21 of 109
          id: qrmh-6086
      author: Grief Davidson, Lindy; Davidson, Adam W.
       title: The anvil: a crushing conversation
        date: 2017-02-15
       words: 7551
      flesch: 77
     summary: We immediately re- alized the many potential losses we faced in that different life, but we did not know and could not have known the depth of life, joy and goodness we would come to expe- rience when we began walking that dark journey together. The authors seek to provide a study of life in the midst of a crisis, which is rarely what it seems from the outside looking in.
    keywords: adam; baby; child; day; future; life; masry; research; room; story; time
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        item: #22 of 109
          id: qrmh-6152
      author: Tullis, Jillian A.; Roscoe, Lori A.; Dillon, Patrick J.
       title: Resisting the hospice narrative in pursuit of quality of life
        date: 2017-07-21
       words: 8751
      flesch: 54
     summary: A common refrain in hospice is that practitioners take their knowledge of palliative care and come alongside hospice patients and their families, and meet them where they are to work together on their journey towards a good death.18-20 Many writers and scholars17-20 have argued that dying and death are experiences many people are sheltered from due to medical advances, industrialization, and cultural and social norms. Methods This investigation of narratives of resistance draws upon existing data from approximately 600 hours of par- ticipant observation and interviews with hospice patients and lay caregivers at three not-for-profit hospices in the Southeastern United States.
    keywords: cancer; care; death; dying; end; families; family; healthcare; hospice; life; medicine; narratives; pain; patients; quality; resistance; staff
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        item: #23 of 109
          id: qrmh-6199
      author: Riva-Mossman, Susie; Verloo, Henk
       title: Explorative healthy aging approaches fostering social innovation: thematizing life course narratives of older women participating in a documentary film
        date: 2017-02-15
       words: 6776
      flesch: 52
     summary: The aforementioned themes were expressed as core com- ponents of hopeful healthy aging. Layout 1 Introduction This paper presents the results of qualitative research conducted among female seniors, exploring the relation- ship between the life course, hope and healthy aging in French-speaking Switzerland.
    keywords: aging; community; film; health; hope; learning; life; narratives; new; participants; process; research; seniors; stories; women
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        item: #24 of 109
          id: qrmh-6219
      author: Davis, Christine S.; Beverly, MD, Sandra K.; Hernandez-Nino, Jackeline; Wyman, Andrew J.; Asimos, Andrew W.
       title: Patient-centered outcomes: a qualitative exploration of patient experience with electroencephalograms in the Emergency Department
        date: 2017-12-31
       words: 11295
      flesch: 61
     summary: Results Seizures are experienced as traumatic emergencies and, coupled with the memory loss and confusion first- time seizure patients experience surrounding the ED visit due to their medical state at that time, for the majority of patients, this experience is fear inducing, unknown, un- expected, and stigmatizing. Because seizures are not an infrequent experience to ED staff, and are not life-threatening conditions from a medical standpoint; but are terrifying and confusing to seizure patients and their families, there is a disconnect between the level of care and concern patients and family members need from the ED and the level of concern pro- vided.
    keywords: care; eeg; experience; family; focus; follow; medication; participants; patients; research; seizure; testing; time; treatment
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        item: #25 of 109
          id: qrmh-6300
      author: Smith-Cavros, Eileen; Avotri-Wuaku, Joyce; Wuaku, Albert; Bhullar, Amal
       title: Oh, as for the Health Insurance…it’s good, but…: rural elders in Agate, Ghana, discuss the National Healthcare Insurance Scheme
        date: 2017-02-15
       words: 5192
      flesch: 55
     summary: To reflect participants’ ac- tions, we relied heavily on quotes (in context of inter- views) the way people talked about health insurance, and their processes of seeking health care. Participants with National Healthcare Insurance Scheme: attitudes Next, we examined the perceptions of those with NHIS about health insurance: why they subscribed and ensuing positives and negatives.
    keywords: article; elders; ghana; health; healthcare; insurance; knowledge; lack; national; nhis; participants; research; scheme
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        item: #26 of 109
          id: qrmh-6301
      author: Castelloe, Erin Nissen
       title: Finding myself in medicine
        date: 2017-02-15
       words: 4155
      flesch: 65
     summary: In an attempt to understand myself and my experiences in medicine – and to connect with others who may share my belief that medicine (and those who practice it) must evolve in order to empower and serve – I share my personal story: the influences and idealism that led me to med- icine; the best career advice I ever received (from a patient, not a doctor); my past and present frustrations with clinical medicine; my struggles to balance my personal and professional aspirations; my growing dissatisfaction with a career in Pharmaceutical Medicine; and, ultimately, my attempts to collect, sow, and cultivate ideas that may – nurtured with tinctures of time and collaboration – become strong, new branches on the magnificent tree of medicine. Only after I was im- mersed in medical school, residency, and Family and Pharmaceutical Medicine was I able to see that the tree of medicine, though its roots are deep and wide, has many diseased and dying branches and is riddled with pests that bore into its bark and sap its strength.
    keywords: branch; family; medical; medicine; patients; practice; research; time; tree
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        item: #27 of 109
          id: qrmh-6367
      author: Ciabattoni, Emily
       title: Changing the narrative: a social reconstruction of anorexia nervosa
        date: 2017-07-21
       words: 9311
      flesch: 61
     summary: Conceptual Reconstructions A. Control B. Mother & Daughter C. Intelligence D. Deviance *How can we use these concepts to create ways of being that discourage AN and the societal systems it perpetuates? AN bounded my being through isolation and the em- bodiment of dominant discourse.
    keywords: anorexia; control; discourses; dominant; figure; good; health; ideal; nervosa; policing; research; self; systems; voice; way
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        item: #28 of 109
          id: qrmh-6391
      author: Gathercoal, Roy O.; Gathercoal, Kathleen A.; Seegobin, Winston; Hadley, Sarah
       title: Nurturing constructive change that works: a critical theory-informed model for transforming health service psychologists’ views of people with disabilities
        date: 2017-02-15
       words: 8655
      flesch: 47
     summary: Teaching health care students about disability within a cultural com- petency context. Olkin R, Pledger C. Can disability studies and psychology join hands?
    keywords: attitudes; care; change; disabilities; disability; exercise; experience; health; people; person; professional; reflection; research; self; simulation; students
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        item: #29 of 109
          id: qrmh-6544
      author: Munteanu, Mihaela C.; Jordan, Julie Choi
       title: A view into clinical practice guidelines: who uses them, who doesn’t and possibly, why
        date: 2017-07-21
       words: 5319
      flesch: 57
     summary: Clinical practice guidelines adherence and consequences theme Secondly, the goal was to provide insights into the social space of action-oriented recommendations that may improve the A view into clinical practice guidelines: who uses them, who doesn’t and possibly, why Mihaela C. Munteanu,1,2 Julie Choi Jordan3 1University of Drexel, Philadelphia, PA; 2Incyte Corporation, Wilmington, DE; 3Teva Pharmaceuticals, Philadelphia, PA, USA ABSTRACT Medical professional societies each develop specific clinical practice guidelines (CPGs).
    keywords: adherence; cpgs; doctors; guidelines; medicine; participants; patients; physicians; practice; research
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        item: #30 of 109
          id: qrmh-6618
      author: Baldwin, Paula K.; Pope, Natalie D.; Marks, Adam D.
       title: Cultural implications of filial obligation and the Asian Indian American family caregiver
        date: 2017-07-21
       words: 4336
      flesch: 55
     summary: Attending to individuals’ cultural background more fully allows health care providers to engage with and support family caregivers who differ in things like their reactions to care- giving, their attitudes towards clinical intervention and outside help, and their ways of coping with stress. Of this group, Asian Indians are a diverse and fast-growing immigrant population in the US and present unique challenges for health care providers.
    keywords: asian; care; caregiver; caregiving; cultural; culture; family; father; health; mother; providers; ravi
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        item: #31 of 109
          id: qrmh-6642
      author: Bartesaghi, Mariaelena
       title: Welcome to Qualitative Research in Medicine & Healthcare
        date: 2017-02-15
       words: 1597
      flesch: 46
     summary: Unlike re- search studies under positivist or post-positivist auspices, true qualitative research does not separate the observer from the lived experience of those whom she observes. And all of the articles raise complex queries, tell difficult stories or ask the complex and uncom- fortable questions for which qualitative research is best equipped.
    keywords: authors; healthcare; life; medicine; research
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        item: #32 of 109
          id: qrmh-6698
      author: Spataro, Christina; Afdhal, Sophie; Weinstein, Ali A.; Escheik, Carey; Austin, Patrick; Brodie, Kathryn; Gerber, Lynn; Younossi, Zobair M.
       title: Fatigue and Hepatitis C: a focus group study
        date: 2017-07-21
       words: 5944
      flesch: 61
     summary: Monoamin- ergic neurotransmission is altered in hepatitis C virus in- fected patients with chronic fatigue and cognitive impairment. The hidden cost of chronic fatigue to patients and their families.
    keywords: chronic; energy; experiences; fatigue; focus; group; hcv; hepatitis; participants; patients; research; study
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        item: #33 of 109
          id: qrmh-6791
      author: Lee, David Haldane
       title: Mandates of maternity at a science museum, from should to must
        date: 2017-12-31
       words: 8423
      flesch: 59
     summary: While science center studies appear in a major communication journal, Public Understanding of Science,6-9 they are not specifically about health exhibits intended to change behaviors. The key argument of this paper is that health exhibits issue directives in addition to informing visitors, an argu- ment presented through a case study of the pregnancy ex- hibits at TAY.
    keywords: baby; birth; bol; communication; directive; exhibits; health; information; medical; mosi; mother; museum; new; pregnancy; press; public; research; science; smoking; speech; visitors; women
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        item: #34 of 109
          id: qrmh-6925
      author: Castelloe, Erin Nissen
       title: Tincture of time
        date: 2017-12-31
       words: 9027
      flesch: 67
     summary: What is the role of time pressure in physician burnout? Recent research topics in physician burnout.
    keywords: burnout; care; cia; cia l; doctors; health; july; medical; medicine; nco; patient; physicians; time; wellness; work
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        item: #35 of 109
          id: qrmh-6932
      author: Bartesaghi, Mariaelena
       title: Editor’s Introduction
        date: 2017-07-21
       words: 1184
      flesch: 49
     summary: Layout 1 [Qualitative Research in Medicine & Healthcare 2017; 1:6932] [page I] In seeing this issue come together, I am reminded of narrative scholar’s Amy Shuman1 examination of avail- able narratives and counter-narratives. As with the other research arti- cles that make up this issue, I invite readers to appreciate how qualitative research is itself a narrative endeavor, a way to take dominant narratives to task, and encourage, if not push for versions that counter the way things are, by proposing viable ways for healthcare practices to take up ways things should and could be. References 1.
    keywords: medicine; narratives; research; stories
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        item: #36 of 109
          id: qrmh-6944
      author: Foster, Elissa; Defenbaugh, Nicole; Hansen, Susan E.; Biery, Nyann; Dostal, Julie
       title: Resident assessment facilitation team: collaborative support for activated learning
        date: 2017-12-31
       words: 10651
      flesch: 49
     summary: In addition, the codes related to emotion in the PGY1 meetings include examples of RAFT faculty members expressing encouragement and support, residents expressing appreciation, and residents’ occasional reference to feeling vulnerable or nervous about the residency. RAFT faculty members continued to influ- ence the flow of conversation by asking questions or (in the case of the medical educator) reminding the group about the RAFT agenda, but the general movement of the responsibility for the content of the meeting from faculty to resident implied that educational planning and deter- mining competence were the purview of the residents as activated learners.
    keywords: assessment; care; education; faculty; interaction; learning; medical; medicine; meetings; members; practice; process; raft; raft meetings; research; residency; residents; self; year
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        item: #37 of 109
          id: qrmh-6996
      author: Ngenye, Liza
       title: Our family portrait: the church as a model of social support
        date: 2018-05-30
       words: 9683
      flesch: 65
     summary: The interview script was divided to four sections: i) how they joined the church; ii) what sup- port they received from church members; iii) experiences in church life; and iv) what church community meant to them. Because family life is messy, we accept that church life is messy; therefore, we can interpret individual cases in the context of larger outcomes of the social wellbeing of church members.
    keywords: church; community; family; health; life; members; needs; pastor; people; qualitative; research; social; study; support
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        item: #38 of 109
          id: qrmh-7006
      author: Drummond, Darlene K.
       title: If my cholesterol is…then I foresee…: patient accounts of uncertainty
        date: 2017-12-31
       words: 6029
      flesch: 58
     summary: As a result, high cholesterol patients live with uncertainty that is not necessarily experienced as bad. Some uncontrollable factors that increase one’s risk for high cholesterol are heredity, age, and sex; but patients can reduce their risk by eating a healthy diet, exercising more, maintaining a healthy weight, not smoking, man- aging chronic illnesses if present, and taking medication when prescribed.
    keywords: adherence; cholesterol; diet; disease; effects; healthcare; nonadherent; patients; research; risk; statin; use
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        item: #39 of 109
          id: qrmh-7007
      author: Anderson, Ariane B.
       title: It doesn’t make sense, but we do: framing disease in an online metastatic breast cancer support community
        date: 2019-08-23
       words: 7127
      flesch: 60
     summary: I applied them to the analysis of textual threads posted by members of TLRand online MBC support group. Literature review Preece defines online support communities as any vir- tual social space where people come together to get and give information or support, to learn, or to find com- pany.10 In online spaces cancer patients seek to gather in- formation, feel connected socially, and increase their personal and collective sense making of their disease.11 Moreover, the ubiquity and ease of access of online com- munication has enabled patients to seek informational and emotional support from countless blogs and social media support groups such as Facebook, Twitter, and Reddit.12 Online support groups for breast cancer patients began to flourish in the mid 1990s when disease focused groups began to form as places for information exchange and mu- tual support.13 Researchers at that time were looking at how groups form and were mainly concerned with information control and how such information seeking would impact pa- tient-provider understanding.13 Sillence researched partici- pants’ exchange of peer advice in an online breast cancer support group for ways that advice-giving impacts patient decision-making and shapes groups as resources for deci- sion making.11
    keywords: breast; cancer; disease; group; health; identity; mbc; members; online; participants; patients; peer; sensemaking; support; tlr
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        item: #40 of 109
          id: qrmh-7049
      author: Hook, Courtney; Plump, Brielle; Geist-Martin, Patricia
       title: Advocating for integrative medicine: providers' stories of resonance, negotiation, and community
        date: 2018-05-30
       words: 13769
      flesch: 59
     summary: IM places emphasis on the collaboration between patients and providers and relies on evidence-based scientific thinking.5 IM providers encourage patients to take per- sonal responsibility for their own health while advocating for the merits of integrative approaches that combine IM and biomedicine. IM providers often offer patients options for less ex- pensive and less invasive medical treatments through in- tegrative approaches of care, but not as a replacement for biomedicine.
    keywords: advocacy; advocate; care; center; communicating; community; health; health care; healthcare; medicine; patients; people; providers; research; stories; study; system; tensions; ways
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        item: #41 of 109
          id: qrmh-7062
      author: Hall, Kelli Stidham; Manu, Abubakar; Morhe, Emmanuel; Dalton, Vanessa K.; Challa, Sneha; Loll, Dana; Dozier, Jessica L.; Zochowski, Melissa K.; Boakye, Andrew; Harris, Lisa H.
       title: Bad girl and unmet family planning need among Sub-Saharan African adolescents: the role of sexual and reproductive health stigma
        date: 2018-05-30
       words: 7983
      flesch: 56
     summary: Our resulting concep- tual model of adolescent SRH stigma can guide health service, public health, and policy efforts to address unmet FP need and de-stigmatize SRH for young women worldwide. New codes that arose from participants’ language and discourse which emerged here were used to inform and refine a new working model of adolescent SRH stigma.
    keywords: abortion; adolescent; community; family; ghana; health; pregnancy; research; school; sex; sexual; social; srh; stigma; women; year
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        item: #42 of 109
          id: qrmh-7114
      author: Pennanen, Eveliina; Mikkola, Leena
       title: Constructing responsibility in social interaction: an analysis of responsibility talk in hospital administrative groups
        date: 2018-12-17
       words: 9309
      flesch: 44
     summary: Role and task responsi- bility relates to fulfilling the duties and expectations as- sociated with a specific role or task at work or elsewhere.1 Role duties may be assigned or informal; in organizations, they may be linked to institutional role responsibilities such as leadership.1 Universal moral responsibility may be either direct or indirect.1 Direct moral responsibility relates to someone’s actions and their consequences in a specific context;1 indirect responsibility arises at a more collective level and encompasses the actions of others, linking to group responsibility or co-responsibility.1 However, task and role responsibility were also seen to emerge from these processes if the actor positioned as re- sponsibility bearer was considered.
    keywords: communication; data; example; group; healthcare; hospital; individual; interaction; meetings; participants; processes; research; responsibility; role; task; work
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        item: #43 of 109
          id: qrmh-7115
      author: Colvin, Janet W.
       title: Knotworking in an emergency response team: understanding team communication and process
        date: 2017-12-31
       words: 8538
      flesch: 59
     summary: Community membership, labor division, and rules for interaction (Engestrom, 2000) also must be in- cluded to understand how OBRR teams work together. The second action, explicating new possibilities or potential in the activity, is evident in the stakeholder role of CCRNs as they explained what was going on as OBRR teams worked together and looking at the process in varied ways.
    keywords: actions; activity; comments; communication; focus; knots; knotworking; obrr; power; process; research; roles; stakeholders; team; training
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        item: #44 of 109
          id: qrmh-7116
      author: Skowronski, Magdalena; Risør, Mette Bech; Foss, Nina
       title: The significance of cultural norms and clinical logics for the perception of possible relapse in rural Northern Norway – sensing symptoms of cancer
        date: 2017-12-31
       words: 8510
      flesch: 59
     summary: Bodily sensations may en- dure and influence the everyday activities of someone who has had cancer. The phase after cancer treatment is often marked by worries about indeterminate bodily sensations, which might be symptoms of possible relapse.1 Our experience of bodily sensations cannot be merely explained physiologically, but should also be examined as culturally embedded, and mediated by social practices and symbolic systems of meaning.2Anthropologists have developed analytical approaches to elaborate the cultural and social meanings of sensations.
    keywords: cancer; care; health; healthcare; norway; participants; patients; people; processes; research; sensations; sense; symptoms; treatment; village
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        item: #45 of 109
          id: qrmh-7157
      author: Hudak, Nicole C.; Carmack, Heather J.
       title: Waiting for the doctor to ask: influencers of lesbian, gay, and bisexual identity disclosure to healthcare providers
        date: 2018-05-30
       words: 8802
      flesch: 54
     summary: Beyond examining the inter- action between healthcare providers and LGB patients, future research should examine how lesbian and bisexual women communicate about STIs, the knowledge lesbian and bisexual women have of STIs, and how they negotiate safe sex with their sexual partners. The risks of disclosure can be very high for LGB individuals, including the refusal of health- care (some states do not protect LGBTQ patients from care denial), intimidation by healthcare providers, breaches in confidentiality, patient embarrassment over having to disclose their sexuality, and fear of homophobic remarks.21,22
    keywords: communication; disclosing; disclosure; healthcare; identity; individuals; information; lesbian; lgb; participants; patients; providers; research; sexuality
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        item: #46 of 109
          id: qrmh-7161
      author: Carmack, Heather J.; Serafin, Julie A.
       title: College students' communication about complementary and alternative medicine practices
        date: 2018-05-30
       words: 5382
      flesch: 53
     summary: Layout 1 Introduction Internationally, the biomedical health model has been the primary methodology for health care treatment.1 Within the last ten years, however, Complementary/Al- ternative Medicine (CAM), a group of diverse medical and healthcare systems, practices, and products that are not presently considered part of conventional medicine, has been gaining momentum among patients and health care practitioners.2 CAM refers to a wide range of ethno- cultural therapeutic practices such as aromatherapy, herbalism, and Reiki.1 The introduction of CAM modali- ties in biomedical treatment has been gradual,3 in part be- cause of the perception among biomedical providers that unconventional treatments represents a rejection of and challenge to the biomedical approach, their lack of general knowledge about CAM, and unproven scientific evidence of their efficacy.4,5 Research on communication and CAM suggests that patients are hesitant to talk with their providers about CAM because they fear providers will stop the conversa- tion.6 Patients’ perception of provider rejection or indif- ference to CAM can strain patient-provider communication.7 To address their needs, some patients go directly to CAM providers. Word of mouth with family and friends can also be biased due to their lack of scientific knowledge of CAM.7 To bridge the gap of communication regarding CAM use in the traditional health care system, some patients go directly to CAM providers who practice integrative med- icine, which focuses on a wide range of health including mental, physical and spiritual well-being.7 The increase of face-to-face communication with CAM providers es- tablishes and reinforces credibility of CAM and the providers as knowledgeable providers who can express positive attitudes of its health benefits.7 Because of this, patients are more likely to support CAM’s professional and therapeutic
    keywords: alternative; cam; communication; complementary; health; medicine; participants; patients; providers; students; therapies; use
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        item: #47 of 109
          id: qrmh-7178
      author: Phillips, Louise; Olesen, Birgitte Ravn; Scheffmann-Petersen, Michael; Nordentoft, Helle Merete
       title: De-romanticising dialogue in collaborative health care research: a critical, reflexive approach to tensions in an action research project's initial phase
        date: 2018-05-30
       words: 11690
      flesch: 46
     summary: [page 1] Introduction Across diverse disciplines and empirical contexts globally, collaborative research practices abound. All this could be read as if we do not think it is possible for collaborative research projects to be awarded funding.
    keywords: action research; collaboration; dialogic; dialogue; field; funding; knowledge; narrative; partners; position; practice; project; relations; research; researchers; voices
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        item: #48 of 109
          id: qrmh-7216
      author: Feinglass, Joe; Wein, Samuel; Teter, Caroline; Schaeffer, Christine; Rogers, Angela
       title: A qualitative study of urban hospital transitional care
        date: 2018-08-31
       words: 6386
      flesch: 58
     summary: Homeless patients… and patients with cancer are automatically assigned to the red group. In particular, staff had to constantly deal with the lack of access to suboxone treatment for heroin users without private insurance, the lack of com- munity mental health homes for homeless patients in need of intensive case management, and extremely long, frus- trating social and behavioral services waiting lists, which one provider described as resulting in patients often changing their mind about behavioral health referrals.
    keywords: care; health; hospital; medicine; nmg; patients; provider; research; respondents; risk; staff; study; transitional; use
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        item: #49 of 109
          id: qrmh-7376
      author: Heiss, Sarah N.; Smith, Kristin K.; Carmack, Heather J.
       title: Waging a professional turf war: an examination of professionalization as a strategic communication practice used by registered dietitians
        date: 2018-12-17
       words: 9374
      flesch: 41
     summary: Other Academy members also made claims to pro- fessionalism by discussing the milestones – like their edu- cation and certification – that best communicated their journey to becoming professional. The potential ramifications of professional turf war discourses aimed at creating conflict and discord to establish legitimacy are concerning.
    keywords: academy; dietitians; expertise; health; healthcare; legitimacy; members; nutritionists; professional; professionalization; public; rds; research; turf; war
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        item: #50 of 109
          id: qrmh-7383
      author: Bartesaghi, Mariaelena
       title: Editor's Introduction
        date: 2017-12-31
       words: 1389
      flesch: 41
     summary: In Patient-centered outcomes: a qualitative explo- ration patient experience with encephalograms in the ED, Davis, Beverly, Hernandez-Nino, Wyman and Asimos allow us to listen to the voices of patients dealing with Editor’s Introduction Mariaelena Bartesaghi Department of Communication, University of South Florida, Tampa, FL, USA Correspondence: Mariaelena Bartesaghi, Department of Commu- nication, University of South Florida, 4202 E Fowler Ave CIS 3057, Tampa, 33620 FL, USA. What is in- teresting to me reading their work is to find out that what matters most to patients is not so much whether they re- ceive an encephalogram or that a particular plan of care be undertaken by the medical team, but that physicians validate patients’ experiences with seizures by carefully explaining exactly which treatment they will be receiving.
    keywords: communication; healthcare; patients; work
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        item: #51 of 109
          id: qrmh-7387
      author: Meluch, Andrea L.
       title: Above and beyond: an exploratory study of breast cancer patient accounts of healthcare provider information-giving practices and informational support
        date: 2018-08-31
       words: 6214
      flesch: 45
     summary: Sloan AG, Knowles A. Improving communication between healthcare providers and cancer patients: A pilot study. However, cancer patients do not always see information-giving processes as helpful because the amount or complexity of information can be overwhelming and contribute to greater stress and uncer- tainty.16,23 Thus, receiving information from a healthcare provider in of itself is not necessarily a supportive expe- rience leading to health benefits.
    keywords: breast; cancer; giving; healthcare; information; participants; patients; providers; research; social; support; time
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        item: #52 of 109
          id: qrmh-7417
      author: Spence, Jessica; Smith, David; Wong, Anne
       title: Stress and burnout in anesthesia residency: an exploratory case study of peer support groups
        date: 2018-09-03
       words: 9487
      flesch: 54
     summary: An international comparative study of anesthesia training programs showed considerable heterogeneity across seven coun- tries.40 All but two countries (UK and Denmark) required direct faculty supervision of the trainees at all stages of training.40 A comparative study of Canadian and Thai anesthesia residency training revealed a team-based ap- proach in the latter.41 Given our study findings, it would be interesting to compare anesthesia resident stress and burnout rates in those countries with an individual versus team-based training model. This combination leaves anesthesia residents particularly dependent on the quality of the faculty-resident relation- ship, especially with respect to their professional and per- sonal self-worth.
    keywords: anesthesia; burnout; faculty; group; meetings; participants; peer; peer support; psg; research; residency; residents; stress; study; support; time; training; work
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        item: #53 of 109
          id: qrmh-7420
      author: Ottewell, Namino
       title: A qualitative study of illness identity: schizophrenia and depression
        date: 2018-08-31
       words: 9326
      flesch: 55
     summary: Takuya, who had been diagnosed with de- pression, described how mental illnesses were viewed in Tokyo, after commenting on the intense stigma against mental illness in general in the countryside: Furthermore, understanding the process will also provide us with a more comprehensive picture of mental illness experience and influences of mental illness and psychiatric diagnosis on one’s identity.
    keywords: depression; diagnosis; identity; illness; illness identity; medication; mental; participants; people; psychiatric; schizophrenia; study; thought
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        item: #54 of 109
          id: qrmh-7572
      author: Atkinson, Timothy; Gathright, Molly; Clardy, James; Thrush, Carol; Messias, Erick
       title: Perspectives of meaningful work in a high-burnout academic medical center: a discourse analysis
        date: 2018-08-31
       words: 9566
      flesch: 55
     summary: In a study more closely aligned with ours, Schrijver, Brady and Trockel conducted 19 focus group ses- sions across 17 clinical departments and found that partic- ipants’ meaningful work emerged as a key component to work motivation.17 In contrast to these findings, meaningful work can sometimes have a negative impact on employee wellness; Jones and Griep call this relationship the double-edged role of meaningful work.18 Work can become so impor- tant, meaningful, and absorbing, that other aspects of wellness are compromised. WAMI study as the guiding document for meaningful work for our qualitative study because of the focus on meaningful work alone.7 Still, these parameters say nothing about the actual mean- ingful work people are doing in an organization.
    keywords: analysis; burnout; care; difference; healthcare; knowing; making; nurses; patients; physicians; research; use; word; work
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        item: #55 of 109
          id: qrmh-7582
      author: Bartesaghi, Mariaelena
       title: Editor's Introduction
        date: 2018-05-30
       words: 1658
      flesch: 41
     summary: From the opening article, which features the voice of Louise Phillips, author of the insightful critique of action research The Promise of Dialogue,2 we are presented with a notion of dialogue not as agreement or harmony (as it is often misconstrued) but as a fascinating tension for analysis. In De-romanticising dialogue in collaborative health care research: a critical, reflexive approach to tensions in an action research project’s initial phase dialogic researchers and practitioners Phillips, Ravn, Scheffmann-Petersen, Helle and Merete Nordentoft take on the romantic notion of dialogue as symmetrical, power- free and inclusionary communication, a sort of unicorn to be captured in ideal research practices.
    keywords: communication; dialogue; healthcare; patients; research
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        item: #56 of 109
          id: qrmh-7646
      author: Applequist, Janelle
       title: The introduction of the medicinal partner in direct-to-consumer advertising: Viagra’s contribution to pharmaceutical fetishism and patient-as-consumer discourse in healthcare
        date: 2018-08-31
       words: 6948
      flesch: 51
     summary: Pharmaceutical companies spent $5.2 billion on advertis- ing alone in 2015, a substantial 19% increase from ad spending in 2014.3 Broadcast ads have seen budgets in- crease more than 10% since 2011, causing an increase in the amount of ads to which viewers are exposed.3 Advertising culture, combined with pharmaceutical The introduction of the medicinal partner in direct-to-consumer advertising: Viagra’s contribution to pharmaceutical fetishism and patient-as-consumer discourse in healthcare Janelle Applequist Zimmerman School of Advertising & Mass Communications, University of South Florida, Tampa, FL, USA ABSTRACT Pfizer, manufacturer of the erectile dysfunction prescription treatment Viagra, has been a staple in the pharmaceutical advertising arena since broadcast versions of such ads became legally permissible in the United States in 1997. The pharmaceutical fetishism inherent in the most re- cent stream of Viagra ads is not only the implication that one will have sex.
    keywords: ads; advertising; analysis; consumer; female; health; man; men; partner; pfizer; pharmaceutical; prescription; research; viagra; women
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        item: #57 of 109
          id: qrmh-7792
      author: Uhre, Jannie
       title: The dialogic construction of patient involvement in patient-centred neurorehabilitation
        date: 2018-12-20
       words: 9653
      flesch: 49
     summary: Injury to the brain often leave patients with commu- nicative impairment that becomes an inclusion or exclusion mechanism in patient-involvement.20,25 The lit- erature shows that health professionals have a tendency [page 166] In both practice and research, it is vari- ously labelled person-centred, person-focused and pa- tient-centred care.1-3 The diverse interpretations range from being responsive to the individual needs of patients in clinical decision making to actively involving patients in the decision-making process.4 Some describe patient- centredness and involvement as a goal for healthcare de- livery while others construct it as a means to improve healthcare.4,5 The confusion surrounding the meaning of patient-centred care leaves a gap between values and prac- tice.3,4
    keywords: care; communication; healthcare; involvement; meaning; narrative; paper; patient; perspective; practice; process; professional; research; voice
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        item: #58 of 109
          id: qrmh-7795
      author: Bjørner, Thomas; Schrøder, Morten
       title: Advantages and challenges of using mobile ethnography in a hospital case study: WhatsApp as a method to identify perceptions and practices
        date: 2019-08-23
       words: 7166
      flesch: 52
     summary: Layout 1 Introduction Patient care quality and communication are central el- ements for nurses helping patients recover optimal health and quality of life. Nurses often coordinate and engage in patient care in multidisciplinary health care teams, includ- ing doctors, therapists, medical practitioners, medical con- sultants, and dietitians.
    keywords: case; catheterization; data; ethnography; management; mobile; nurses; patients; practices; research; self; spinal; study; time; whatsapp
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        item: #59 of 109
          id: qrmh-7816
      author: Logan, Ryan I.
       title: Not a duty but an opportunity: exploring the lived experiences of community health workers in Indiana through photovoice
        date: 2018-12-17
       words: 10288
      flesch: 50
     summary: Giving a face to HIV and AIDS: on the uses of photo-voice by teachers and community health care workers working with youth in rural South Africa. E-mail: ryanlogan@mail.usf.edu Key words: Community health workers; Photovoice; Access to care; Health disparities; Lived experience; Indiana.
    keywords: care; chws; clients; community; community health; discussion; experiences; health; health care; participants; photographs; photovoice; project; research; resources; system; workers
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        item: #60 of 109
          id: qrmh-7817
      author: Bartesaghi, Mariaelena
       title: Editor's Introduction
        date: 2018-09-10
       words: 1284
      flesch: 34
     summary: In this way qualitative research about healthcare is already transformative of healthcare practices for staff and pa- tients alike: it allows for better practices to emerge from those that are currently experiences as less than ideal. The active co-creation of health- care practices in qualitative research is nothing if not sup- portive and thus constitutive of change as it starts from the premise of listening and paying close attention.
    keywords: burnout; healthcare; research; study; support
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        item: #61 of 109
          id: qrmh-7826
      author: Blix, Bodil H.; Hamran, Torunn
       title: Assisted living in rural areas: aging in blurred landscapes
        date: 2019-08-26
       words: 9794
      flesch: 60
     summary: However, this mismatch was more often presented as a result of large geographical distances and the capacity issues in home care services, as outlined in the following statement from a health care professional: Who works in home care services and who
    keywords: aging; alfs; assisted; care; family; group; health; health care; home; interviews; living; nursing; people; place; professionals; services
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        item: #62 of 109
          id: qrmh-7832
      author: Hughes, Katherine; Bombak, Andrea E.; Ankomah, Samuel
       title: Experiences of weight-related stigma among low-income rural women of higher weights from the midwestern United States
        date: 2019-04-18
       words: 5545
      flesch: 56
     summary: In a study that helps elucidate why women of higher weights are less likely to seek care than thinner counterparts, Mensinger et al.12 found that women of higher weight experience in- ternalized weight-related stigma that contributes to body guilt and shame. Rural residents also must cope with added stereotyping of backwardness and unsophistication.6 Despite established research high- lighting the disproportionate disparities rural individuals face,7 women and weight-related stigma in rural and low- income environments are not studied often, in part, perhaps because these women are perceived as being less concerned with their bodies.8 Women experience harsher weight stigma in a variety of settings, and weight stigma in women is experienced at a lower weight compared to men.1 Evidence of stigma and its impact on psychological and behavioral responses should be viewed as a vital determinant of health that greatly influences health and health inequalities.9 Weight-related stigma and healthcare Weight-related stigma and stereotypes are widespread across society, including among healthcare professionals.2,10 Mounting evidence indicates that weight-related stereo- types negatively influence the quality of care higher weight individuals receive, worsening disparities and barriers to Experiences of weight-related stigma among low-income rural women of higher weights from the midwestern United States Katherine Hughes,1 Andrea E. Bombak,2 Samuel Ankomah1 1School of Health Sciences, Central Michigan University, Mount Pleasant, MI, USA; 2Department of Sociology, University of New Brunswick, NB, Canada ABSTRACT Weight-related stigma and stereotypes are widespread.
    keywords: experiences; healthcare; income; individuals; interviews; participants; qualitative; research; stigma; study; weight; women
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        item: #63 of 109
          id: qrmh-7850
      author: Schmid, Wolfgang
       title: Meeting complexity with collaboration: a proposed conceptual framework for participatory community-based music therapy research in end of life-care
        date: 2018-12-17
       words: 8115
      flesch: 44
     summary: This will inform and stimulate the imple- mentation of participatory music therapy research across contexts. The second thematic cluster MECS addresses how a participatory approach to music therapy research might help to i) facilitate recruitment and involvement of termi- nally ill people presenting with often frail and rapidly changing conditions, ii) strategies for the identification of research topics and outcomes relevant for these people, and iii) an increasing preference for end-of-life care at home.
    keywords: care; community; end; health; healthcare; knowledge; life; life care; music; music therapy; participatory; people; practice; research; scenarios; therapy; therapy research
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        item: #64 of 109
          id: qrmh-7875
      author: Johnson, Bethany; Quinlan, Margaret M.; Pope, Nathan
       title: #ttc on Instagram: a multimodal discourse analysis of the treatment experience of patients pursuing in vitro fertilization
        date: 2019-04-18
       words: 10991
      flesch: 55
     summary: Be- tween 1991 and today, the majority of individuals in America gained access to the Internet, web search engines and social media platforms, mainly through hand-held de- vices known as smartphones.13-21 After the advent of the Internet and before the popularity of social media, schol- ars began investigating movements of individual users navigating health information collected by search engines as they sought advice and expertise online.22-24 Initially, Internet use focused on desktop computers, and then more portable laptops.19 Today, individuals favor smartphones; as of January 2014, 56% of American adults own a smart- phone.25 The prevalence of smartphone use drastically in- creased mobile, instant, interactive communication through social networking. Materials and Methods In our study of Instagram, we utilized Kress and van Leeuwen’s49 multimodal discourse analysis framework50 because it allowed us to explore the complex interrela- tions of social media discourse.
    keywords: analysis; comments; discourse; expertise; hashtags; health; healthcare; images; individuals; infertility; information; instagram; ivf; media; medicine; patients; platforms; posts; pregnancy; research; social; text; treatment; users
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        item: #65 of 109
          id: qrmh-7943
      author: Behar-Horenstein, Linda S.; Zhang, Huibin
       title: Clinical translational students' perceptions of research ethics coursework: a case study
        date: 2019-04-18
       words: 8206
      flesch: 45
     summary: However, requiring enrollment in research ethics courses is insufficient with- out a concomitant emphasis on evaluating instruction and student outcomes, suggesting that they are in effect a stamp of approval. To ensure that research ethics courses adequately prepare researchers to handle the complexities of ethical dilemmas in translational science research, we offer several ideas to further this research agenda.
    keywords: analysis; clinical; content; course; data; dilemmas; ethics; learning; misconduct; participants; research; research ethics; science; students; study; work; yes
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        item: #66 of 109
          id: qrmh-7962
      author: Britt, Rebecca K.; Englebert, Andrew
       title: Experiences of patients living with inflammatory bowel disease in rural communities
        date: 2019-04-18
       words: 6681
      flesch: 60
     summary: Given that IBD care often requires long-term treat- ment, many participants reported the challenges associated with barriers after diagnosis. IBD patients must cope with a lifelong illness with relapses, remissions, and varied treatments that can affect their overall quality of life.
    keywords: bowel; care; disease; experiences; health; ibd; life; participants; patients; research; self; symptoms
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        item: #67 of 109
          id: qrmh-8012
      author: Bartesaghi, Mariaelena
       title: Editor's Introduction
        date: 2018-12-20
       words: 1345
      flesch: 43
     summary: In his reflection about dialogic research in creating a bridge between pa- tients and healthcare practitioners, Schmid writes that is- sues emerging in the process are always explicit part of the process itself “to be dealt as process. The standard of published work will no doubt keep getting higher (and so I will have to reject more).
    keywords: healthcare; medicine; research; work
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        item: #68 of 109
          id: qrmh-8051
      author: Velan, Baruch; Pinchas-Mizrachi, Ronit
       title: Health concerns of young Israelis moving from the ultra-orthodox to the secular community: vulnerabilities associated with transition
        date: 2019-04-18
       words: 7293
      flesch: 55
     summary: Interviewees indicated that the ExOr population could be affected by mental health problems, including stress and de- pression, by sexual health problems, and by risks related to substance abuse and hazardous behavior. Mental health problems are of major concern among ExOr; this is critical and should be taken care of.
    keywords: adults; behavior; exor; health; immigrants; individuals; interviewees; orthodox; people; problems; process; research; study; transition; world
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        item: #69 of 109
          id: qrmh-8200
      author: Bell, Jo; Reid, Marie; Dyson, Judith; Schlosser, Annette; Alexander, Tim
       title: There’s just huge anxiety: ontological security, moral panic, and the decline in young people’s mental health and well-being in the UK
        date: 2019-08-26
       words: 9702
      flesch: 55
     summary: Pressure and uncertainty about the future This theme attributes an increase in anxiety to the complexities of growing up in a modern changing society with competing pressures and uncertainty: Young people can’t be young people because there’s too much pressure on them…our society as a whole is just a lifelong pressure and we don’t seem willing to reduce it (FG1). Layout 1 [Qualitative Research in Medicine & Healthcare 2019; 3:8200] [page 87] Introduction Over recent years in the UK, there has been a marked increase in the reporting and diagnosis of mental health problems in young people, along with an increased aware- ness of these issues amongst the public, health and social work practitioners, and policy makers.
    keywords: anxiety; austerity; data; harm; health; health problems; issues; media; participants; people; pressure; problems; research; self; services; social; society
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        item: #70 of 109
          id: qrmh-8213
      author: Peters, Grace
       title: The role of standardized patient assessment forms in medical communication skills education
        date: 2019-08-23
       words: 9393
      flesch: 48
     summary: The use of parenthetical sample statements to explain communication skills tasks are used for abstract concepts like active listening, partnership, empathy, apologizing, and legitimization. A physician with communication skills en- sures their patients will better adhere to treatment recom- mendations, manage their own heath, and report greater satisfaction with their practitioners; in turn physicians will receive a lower incidence of medical malpractice suits, avoid burnout, and increase empathy for their patients.1-3 Institutions like the National Institutes of Health and the Association of American Medical Colleges, support and ensure the development of communication skills through governmental programs, curriculum requirements, and li- censing practices.4,5 Undergirding the value of communication skills in medicine is the assumption that communication is a skill that can be taught and learned.
    keywords: analysis; assessment; assessment form; communication; communication skills; discourse; form; interactions; items; medical; mss; patient; practice; skills; sps; statements; student; tasks
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        item: #71 of 109
          id: qrmh-8254
      author: Bartesaghi, Mariaelena
       title: Editor’s introduction: research as mediation
        date: 2019-04-30
       words: 924
      flesch: 55
     summary: You have demon- strated that the real aim here to create a fruitful interaction between authors editors and re- viewers for the advent of science. Editor’s introduction: research as mediation Mariaelena Bartesaghi Department of Communication, University of South Florida, Tampa, FL, USA Correspondence: Mariaelena Bartesaghi, Department of Commu- nication, University of South Florida, CIS 1040, 4202 E. Fowler Ave, Tampa, 33620 FL, USA Tel.: +1.813.974.2145 - Fax: +1.813.974.6817. E-mail: mbartesaghi@usf.edu Received for publication: 26 April 2019.
    keywords: healthc; med; research; work
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        item: #72 of 109
          id: qrmh-8536
      author: Bartesaghi, Mariaelena
       title: Editor’s introduction: qualitative research and the epistemics of experience
        date: 2019-09-06
       words: 1438
      flesch: 46
     summary: In It doesn’t make sense, but we do: framing disease in an online metastatic breast cancer support communityAnderson’s examination of Facebook threads between support group members demonstrates that when medical experts are out of the picture, women can occupy online spaces by resisting the medical metaphors of war and their entailments of winners and losers in the battle against cancer, thus allowing for the emergence of different identities, and the communicative creation of different bodies altogether.6 The closing article by Bell et al.7 reminds me of this remark about psychiatry by the late Thomas Szasz: psychiatrists, he noted, are not concerned with mental illnesses and their treatments. In actual practice they deal with personal, social, and ethical problems in living.10 In There’s just huge anxiety: ontological security, moral panic, and the decline in young people’s mental health and well-being in the UK, the authors rejoin a mounting critique of the biochemical model of mental illness as a disease of the mind or brain and locate it instead as a response to a collapse of ontological security, or what young people in the UK need to feel safe.
    keywords: communication; experience; illness; knowledge; research
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        item: #73 of 109
          id: qrmh-8572
      author: Pender, Paul
       title: Winding Down, Facing Up: Insights gained on the road to retirement
        date: 2019-12-22
       words: 3642
      flesch: 67
     summary: However, in the twilight of my career, certain stressors of life in general, and of medical practice in particular, challenged my inner- most thoughts of personal strength. Moving toward part-time work would help free me from the obligation of paying for practice overhead.
    keywords: new; partners; patients; physician; practice; surgery; time; work; writing
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        item: #74 of 109
          id: qrmh-8619
      author: Cataldo, Jessica; Collins, Sandra; Mckinnies, Richard C; Nichols, Jane; Shaw, Thomas A
       title: Addressing the Opioid Epidemic: Recommended Solutions from Physicians
        date: 2020-09-01
       words: 6826
      flesch: 53
     summary: Addition- ally, payment policies and incentives around the appro- priate use of opioids and non-opioid pain treatments are also outlined by DHSS. Nearly all physicians surveyed believed there was a current opioid crisis in the United States and that physicians should take an active role in addressing opioid use in patients.
    keywords: dhss; education; epidemic; health; medicine; opioid; pain; patients; physicians; respondents; responses; solutions; treatment; use
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        item: #75 of 109
          id: qrmh-8635
      author: Castelloe, Erin Nissen
       title: Human rights violations in medicine: a-to-z action guide by Dr. Pamela Wible
        date: 2019-12-22
       words: 863
      flesch: 62
     summary: Had I received Dr. Wible’s advice during my years in medical school, resi- dency, or medical practice, my personal experience with human rights violations in medicine - née burnout,5,6 née system-induced distress7 - might have ended differently. Wible’s book and her mission fill me with hope: hope that we can eradicate human rights violations from this career that I love; hope that we can direct the compassion- ate care we show our patients toward medical students, residents, physician colleagues, and ourselves; and hope that we can shatter the stigma surrounding mental health diagnoses and prioritize mental healthcare for all.
    keywords: medicine; violations; wible
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        item: #76 of 109
          id: qrmh-8638
      author: Freeman, Melissa J.
       title: Nevertheless, I have persisted
        date: 2019-12-22
       words: 8004
      flesch: 72
     summary: (MedEd)itorial: The dark side of physician health programs. Wible P. Beloved doctor dies in physician health program.
    keywords: 2019; anxiety; doctors; health; help; medical; medicine; november; patients; physician; state; suicide; testing; wphp
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        item: #77 of 109
          id: qrmh-8639
      author: Lebovitz, Lucas; Wu, Brian
       title: Medical student wellness and professional development are harmed by the current state of medical licensing examination: a student perspective on Step 1
        date: 2019-12-22
       words: 1694
      flesch: 52
     summary: In recent years there has been a dramatic increase in awareness, research, and action concerning the mental health of medical students. When medical student suicides do occur, they rock the foundations of their communities and demand cultural and institutional action to address the ways in which medical education contributes to this epidemic.7 In its current form the USMLE Step 1 Exam, in addition to its flaws as an objective differentiator of applicants, causes lasting damage to mental health and professional develop- ment, and a serious attempt to improve the wellness of medical students must include changes to the exam.
    keywords: health; medicine; school; step; students
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        item: #78 of 109
          id: qrmh-8642
      author: Pangborn, Stephanie M.; Harter, Lynn M.
       title: Traversing temporalities at end-of-life: Mobilizing narratives with imagination and aesthetic sensibilities
        date: 2020-09-01
       words: 10520
      flesch: 54
     summary: Motivated by curiosities about how storytelling arises and functions in contexts often characterized as the end, this project illustrates the capacity of storytelling to traverse the tempo- ralities of life stories while meaningfully responding to the challenges of relational connection and narrative continuation in hospice contexts. The second author’s mother graduated from hospice care when her health sta- bilized and her father’s life ended in hospice care.
    keywords: author; care; cie; end; experiences; family; healthcare; hospice; imagination; individuals; life; medicine; narrative; patients; people; research; stories; storytelling; time
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        item: #79 of 109
          id: qrmh-8647
      author: Phelan-Adams, Anne Louise
       title: A physician’s descent into abject poverty for seeking help from a PHP
        date: 2019-12-22
       words: 2540
      flesch: 67
     summary: Yes, Dr. Wilkie should have been a happy man, and for the most part, he was. Perhaps because it was a small town where everyone seemed to know everything about everyone or perhaps it was his fear that his board might find out about his psychological problems, Dr. Wilkie tried to keep his struggle to himself and did what the New Testament ex- horted, Medice curate te ipsum - Physician, heal thyself - which Wilkie took to mean Treat yourself.
    keywords: license; medical; php; wilkie
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        item: #80 of 109
          id: qrmh-8649
      author: Wible, Pamela; Palermini, Arianna
       title: Physician-Friendly States for Mental Health: A Comparison of Medical Licensing Boards
        date: 2019-12-22
       words: 10017
      flesch: 51
     summary: Though students enter medicine with their men- tal health on par with or better than their peers, they are 3 times more likely to kill themselves, according to the Physician-Friendly States for Mental Health: A Comparison of Medical Licensing Board Applications Pamela Wible,1 Arianna Palermini2 1Family Physician, Founder Ideal Medical Care, Eugene, OR, USA; 2Medical student ABSTRACT Do medical boards undermine physician mental health by breaching physician confidentiality and privacy? We then identify the most favorable states for physician mental health.
    keywords: ability; board; care; condition; disorder; health; impairment; medical; medicine; physician; practice; questions; states; use; years
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        item: #81 of 109
          id: qrmh-8665
      author: Manion, Kernan Thomas
       title: To heal or not to heal, physician, that is the question
        date: 2019-12-22
       words: 8551
      flesch: 46
     summary: Fortunately, over the prior decade, there has been an intensified interest in understanding physician burnout and exploring remedies. Such compulsory mental health evaluations are in reality comparable to an involuntary outpatient civil commitment, albeit conducted under the threat of emer- gency license suspension, irreparable damage to one’s reputation and standing and loss of one’s medical career - forever and everywhere.
    keywords: abuse; assessment; board; burnout; care; health; medical; mlb; php; phps; physician; program; state; substance; treatment
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        item: #82 of 109
          id: qrmh-8688
      author: Nykänen, Hanna; Mikkola, Leena
       title: The Discursive Struggles of the Client–Worker Relationship in the Social Services
        date: 2020-09-01
       words: 7671
      flesch: 48
     summary: Data We interviewed social services workers from two dif- ferent organizations for a total of 22 interviews. The first data set consisted of 12 in-depth interviews25 of social service workers from the same disability services unit.
    keywords: client; communication; contradictions; discourses; meanings; relationship; research; services; social; struggle; study; worker; worker relationship
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        item: #83 of 109
          id: qrmh-8740
      author: Tshiama, Claudine; Bongo, Gédéon; Nsutier, Oscar; Babintu, Mukandu Basua
       title: Lay knowledge regarding the prevention of complications related to childbirth: Perceptions of Congolese pregnant women
        date: 2022-05-31
       words: 5607
      flesch: 59
     summary: Lay knowledge is commonly practiced outside of the health system (i.e., outside of the health education received during antenatal consultations and often without the knowledge of medical staff).13-16 Studies suggest that the main motivation for women’s use of lay knowledge is that, despite all the activities organized by antenatal services, antenatal classes seem to be of little help to future parents.17-18 In the Democratic Republic of the Congo, lay knowl- edge about pregnancy and childbirth is poorly documented with little knowledge among nursing staff. Proposals from participants using lay knowledge to the nursing staff Asked for their advice about using lay knowledge in professional healthcare settings, respondents suggested that nursing staff working in prenatal consultation service integrate lay knowledge classes into antenatal health ed- ucation.
    keywords: antenatal; childbirth; complications; health; healthcare; knowledge; participants; pregnancy; qualitative; research; study; women
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        item: #84 of 109
          id: qrmh-8801
      author: Gorbenko, Ksenia; Mendelev, Eliezer; Dubinsky, Marla; Keefer, Laurie
       title: Establishing a medical home for patients with inflammatory bowel diseases: a qualitative study
        date: 2020-10-29
       words: 6616
      flesch: 59
     summary: Team Building and Leadership By team building and leadership, we mean to capture what we observed in the team meetings with some con- sistency and what team members said about their subjec- tive perception of their team (e.g. who was in and who was out of the team, who led team meetings and who co- ordinated the work of the team outside of the meetings). Study Design This multimethod study includes two components: i) observations of team meetings by two observers, [KG and EM] (approximately 30 observation hours per year); ii) semi-structured interviews with GRITT team members and referring gastroenterologists.
    keywords: care; gritt; health; healthcare; home; ibd; medical; meetings; members; patients; program; providers; research; study; team
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        item: #85 of 109
          id: qrmh-8821
      author: Rahman, Rachel J.; Keenan, Joseph R.; Hudson, Joanne
       title: Exploring rural palliative care patients’ experiences of accessing psychosocial support through telehealth: A longitudinal approach
        date: 2020-09-01
       words: 10784
      flesch: 56
     summary: In areas where specialist community palliative care or hospice at home teams exist the occurrence of individuals dying out of hospital (84%) far exceeds the national average in the UK (52%).3 However, in rural areas delivery of community care can be challenging as services face higher costs as a result of lower economies of scale, challenging recruit- ment and retention of specialist staff, difficult geograph- ical areas to service and increased rates of older adults in need of specialist services.4,5 It is perhaps not surprising therefore that evidence from rural areas has previously identified that palliative care patients report less symptom control, a lack of regular access to nurses and a lack of communication with medical professionals in comparison with their urban counterparts.6 Other studies have high- lighted the need for improved access to social and psy- chological support for palliative care patients.7 This is particularly evident in rural areas of the UK, where cur- Exploring rural palliative care patients’ experiences of accessing psychosocial support through telehealth: A longitudinal approach Rachel J. Rahman,1 Joseph R. Keenan,2 Joanne Hudson3 1Psychology Department, Aberystwyth University, 2Manchester Metropolitan University; 3Swansea University, UK ABSTRACT In this research, we explore the experiences of rural palliative care patients receiving psychosocial support through telehealth. This study is one of the first articles that takes a lon- gitudinal phenomenological approach with palliative care patients using telehealth and we ask the research question: how do palliative care patients make sense of their expe- rience of using telehealth to access psychological support over a three-month period?
    keywords: care; coleen; face; home; jackie; month; palliative; participants; patients; peggy; research; support; telehealth; therapist; time
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        item: #86 of 109
          id: qrmh-8921
      author: Bartesaghi, Mariaelena
       title: Editor’s introduction to the Guest Editor Pamela Wible
        date: 2019-12-22
       words: 433
      flesch: 57
     summary: Dr. Wible speaks widely on health care delivery and physician suicide prevention. Dr. Wible runs a free doctor suicide hotline and has helped countless med- ical students and physicians heal from anxiety, depression, PTSD, and suicidal thoughts so they can enjoy practicing medicine again.
    keywords: medicine; wible
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        item: #87 of 109
          id: qrmh-8922
      author: Wible, Pamela
       title: Introduction to the Special Issue on Physician Mental Health
        date: 2019-12-22
       words: 553
      flesch: 54
     summary: Welcome to a special issue of Qualitative Research in Medicine and Healthcare dedicated to physician mental health and the unexplored lives of our wounded healers. Eradicating mental health stigma from within medi- cine allows our healers to receive the non-punitive psy- chological support they require - and as a result we all benefit.
    keywords: health; medical
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        item: #88 of 109
          id: qrmh-8977
      author: Zamora, Kara A.; Abraham, Traci H.; Koenig, Christopher J.; Hill, Coleen C.; Pyne, Jeffrey M.; Seal, Karen H.
       title: Using an Adapted Case Study Approach to Understand Rural Veteran Experiences in Patient Engagement and Patient-Centered Care Research
        date: 2020-10-29
       words: 9591
      flesch: 55
     summary: These case studies illustrate varied forms of mental health care engagement, including use of community resources and self-management activities, that might not be recognized by clinicians as contributing to mental health treatment. These ac- tivities represented additional aspects of what Nicholas considered to be engaging in mental health care, even though these activities would not typically be recognized by health care providers as mental health treatment.
    keywords: analysis; care; case; engagement; experiences; george; health; health care; health treatment; military; patient; qualitative; research; samuel; study; treatment; veterans
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        item: #89 of 109
          id: qrmh-9001
      author: Abraham, Traci H.; Cheney, Ann M.; Curran, Geoffrey M.; Drummond, Karen L.
       title: Drinking as routine practice among re-integrating National Guard and Reservists from Arkansas
        date: 2020-10-29
       words: 9265
      flesch: 48
     summary: Evidence that psychological resilience may reduce excessive drinking in former military personnel comes from a recent study in which higher levels of psycholog- ical resilience correlated with lower rates of problematic drinking in Iraq and Afghanistan Veterans exposed to combat.34 Although initial evidence suggests that enlisted mili- tary personnel perceive interventions which build psycho- logical resilience as helpful,33 a recent review of resilience training for active duty military personnel found wide- [Qualitative Research in Medicine & Healthcare 2020; 4:9001] Health related behaviors survey of active duty military personnel [Internet].
    keywords: alcohol; civilian; conditions; context; deployment; distress; drinking; life; military; participants; practice; research; routine; substance; use; veterans
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        item: #90 of 109
          id: qrmh-9073
      author: Hammersley, Richard; Reid, Marie; Dalgarno, Phil; Wallace, Jason; Liddell, Dave
       title: Trauma, violence and recovery in the life stories of people who have injected drugs
        date: 2020-10-29
       words: 9292
      flesch: 60
     summary: Two broad classes of circumstances have been pro- posed to explain drug related violence: i) Circumstances of enforcement, when buying and selling illegal drugs are po- liced by threats of, and actual, violence;9,10 ii)Cultural cir- cumstances, when problem drug use (typically involving opiates, stimulants or both) occurs in a deviant subculture11 where certain forms of violence are considered normal, or instrumentally necessary. Most Scots who inject have in- jected heroin, but they usually also take and inject other drugs.17 For life stories involving drug injecting, the con- cept of a subculture also may be problematic because peo- ple in recovery often emphasise that the lifestyle of injecting heroin or other drugs is inauthentic and based only on a shared desire for drug use by people who oth- erwise have little in common.18 However, ethnographic accounts of how social groups of drug injectors function suggest a subculture at the time, which can be durable and have positive attributes such as caring, sharing, compas- sion and mutual support.7,18 Here milieu is used to encap- sulate these sociological complexities.
    keywords: drug; drug use; effects; events; heroin; injecting; life; milieu; people; problem; recovery; research; respondents; stories; trauma; use; violence
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        item: #91 of 109
          id: qrmh-9077
      author: Aldossary, Deemah Nassir; Milton, Sherran
       title: A focused ethnography of how endoscopy practitioners utilize capnography in sedated patients
        date: 2020-10-30
       words: 8260
      flesch: 49
     summary: Given the inherent risk, capnography monitoring is recommended whenever sedation is administered. In the first phase, we performed non-participant observation to ex- plore the practice of capnography monitoring during se- dation; and in the second phase, we carried out semi-structured interviews of the same study participants were observed.
    keywords: alarms; anesthesia; capnography; endoscopy; experience; monitoring; nurses; observation; participants; patient; practitioners; research; safety; sedation; study; use
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        item: #92 of 109
          id: qrmh-9102
      author: Hopeck, Paula
       title: Care workers’ experiences discussing financial issues with families facing end-of-life decisions
        date: 2021-02-25
       words: 8975
      flesch: 60
     summary: Families and hospitalized elders: A typology of family care actions. Samuel’s comment reflects that other areas of family life suffer from financial issues, in- cluding not having enough food.
    keywords: care; care workers; concerns; end; families; family; financial; help; issues; life; members; participants; patient; research; workers
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        item: #93 of 109
          id: qrmh-9174
      author: Lafrenaye, Sylvie; Dumas, Marc; Gosselin, Émilie; Duhamel, André; Bourgault, Patricia
       title: Parents living with a child afflicted by a life-limiting medical condition: Typology of their narrative identity
        date: 2021-10-05
       words: 7106
      flesch: 61
     summary: Furthermore, helping Almighty parents to remain parents despite all ad- vice and therapies ordered is a challenge, meaning that they can make their own choices despite “therapeutic or- ders,” as they should remain the authors of their life. [Qualitative Research in Medicine & Healthcare 2021; 5:9174] Article No n- co mm er cia l u se on ly should be reminded that obedient parents are quite re- warding to them, but that can deter parents from their pri- mary role of parenting love for their child.
    keywords: category; child; children; identity; life; medical; narrative; parents; research; serenity; spirituality; study; suffering
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        item: #94 of 109
          id: qrmh-9175
      author: Grabowska, Weronika; Holden, Selma; Wayne, Peter M; Kilgore, Karen
       title: An ethnographic study of opioid use disorder in rural Maine: The problem of pain
        date: 2021-02-25
       words: 11296
      flesch: 56
     summary: The study was designed to capture participants’ understandings of the complexity of the problem and uncover the health care challenges related to OUD treatment through in-depth understanding of the problem.23,24 Data collection Participant observations During this study, I visited eight different treatment centers providing support and treatment to people recov- ering from OUD to shadow medical practitioners or ob- serve group therapy, to better understand the OUD problem in its socio-cultural context and too learn about types of OUD treatments and their accessibility. No n- co mm er cia l u se on ly pharmaceutical lobby, over-prescription patterns, medical culture regarding pain treatment, and individuals’ per- sonal histories of pain, their sociodemographic character- istics, their communities’ availability of supportive social structures, and local and regional cultural norms and poli- cies regarding substance use.
    keywords: addiction; care; community; health; maine; medical; medicine; opioid; oud; pain; patients; people; prescription; providers; qualitative; recovery; research; rural; social; treatment; use
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        item: #95 of 109
          id: qrmh-9314
      author: Bartesaghi, Mariaelena
       title: On narrative (re)imagining in the age of pandemic: Editor’s Introduction
        date: 2020-09-01
       words: 1817
      flesch: 54
     summary: Layout 1 [Qualitative Research in Medicine & Healthcare 2020; 4:9314] [page I] This issue, that has been realized and published during the difficult period of the global pandemic, is the result of many efforts and for this I would like to thank the editorial team and all the wonderful contributors, readers and review- ers of Qualitative Research in Medicine & Healthcare.
    keywords: healthcare; life; medicine; research; way
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        item: #96 of 109
          id: qrmh-9376
      author: Tetteh, Dinah A.; Akhther, Najma
       title: Openness and topic avoidance in interpersonal communication about ovarian cancer: An uncertainty management perspective
        date: 2022-01-31
       words: 11563
      flesch: 57
     summary: Although some past studies24,25 have included cancer survivors/patients as participants, the majority of research on openness and TA in cancer communication used data from a relational dyad (e.g., a cancer patient and a partner) or caregivers and family members. Further, this study extends the extant literature on openness and TA in cancer communication by focusing on ovarian cancer.
    keywords: cancer; children; communication; disease; experience; family; information; openness; participants; patients; research; study; survivors; uncertainty
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        item: #97 of 109
          id: qrmh-9427
      author: Chacón Gámez, Yolanda María ; Biller-Andorno, Nikola
       title: Living with Parkinson’s disease and connected to the duodopa pump: A qualitative study
        date: 2021-02-25
       words: 10643
      flesch: 63
     summary: Furthermore, PD does not present a challenge to patients only but also to their family care- givers.4 Nowadays, PD can be managed through a variety of oral pharmacological treatments such as Levodopa, dopamine agonists, transferase inhibitors or anticholiner- gic medication.1 Device-aided therapies such as Deep Brain Stimulation (DBS) or medicine pumps such as the duodopa or the apomorphine pump can be an option for PD patients who are refractory to oral treatment. Our research fills this research gap by analysing the accounts of the experiences of a sample of PD patients treated with the pump and their caregivers.
    keywords: caregivers; data; disease; drawings; experiences; interviews; life; medicine; parkinson; participants; patients; perception; pump; research; study; symptoms; treatment
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        item: #98 of 109
          id: qrmh-9454
      author: Bartesaghi, Mariaelena
       title: Editor’s introduction: Applied qualitative research
        date: 2020-11-05
       words: 1536
      flesch: 43
     summary: In both “Drinking as routine practice among re-inte- grating National Guard and Reservists from Arkansas”3 and “Trauma, violence and recovery in the life stories of people who have injected drugs”4 the researchers adopt a life history approach, weaving informants’ accounts about the sensitive subject matter under investigation into mul- tiple unfolding contexts of their lives. In their life-history study of drinking as routine practice among reintegrating military, Traci H. Abraham, Ann M. Cheney, Geoffrey M. Curran, and Karen L. Drummond do just that.
    keywords: healthcare; life; qualitative; research; researchers
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        item: #99 of 109
          id: qrmh-9489
      author: Barchager, Nynne
       title: The ruling relations of patient involvement in cardiac rehabilitation programs
        date: 2021-10-05
       words: 9472
      flesch: 50
     summary: Patient involvement is important in cardiology be- cause heart patients often have difficulty in maintaining long-term lifestyle changes.22 They also have complex, non-linear recovery processes and individually unique ways of dealing with heart disease.23-25 Positive effects of patient involvement include perceived greater ownership [page 24] Patient involvement in Danish cardiac care In Danish healthcare, we see an ever-increasing focus on patient involvement.
    keywords: actions; activities; article; danish; exercise; healthcare; instructions; involvement; knowledge; lifestyle; nurse; pathway; patient; professionals; rehabilitation; texts
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        item: #100 of 109
          id: qrmh-9564
      author: Jones, Georgina; Brown Hajdukova , Eva; Hanna, Esmee; Duncan, Rosie; Gough, Brendan; Hughes, Jane; Hughes, Debbie; Ashworth, Fran; Prevot, Johan; Drabwell, Jose; Solis, Leire; Mahlaoui, Nizar; Shrimpton, Anna
       title: It’s long-term, well it’s for life basically: Understanding and exploring the burden of immunoglobulin treatment in patients with primary immunodeficiency disorders
        date: 2021-02-25
       words: 13434
      flesch: 57
     summary: To measure treatment burden, a few generic bur- den of treatment questionnaires are currently available, but these have been designed to capture treatment burdens across a wide range of chronic illnesses, for example, the Patient Experience with Treatment and Self-Management questionnaire.34 Some of the patient’s perceived Ig treat- ment burdens we identified would be captured in this [Qualitative Research in Medicine & Healthcare 2020; 4:9564] As the aim was to understand the pa- tient’s lived experience of Ig treatment burden, we used a phenomenological theoretical approach to guide the in- terpretation of the data.
    keywords: analysis; burden; data; health; home; hospital; ig treatment; ivig; life; patients; qualitative; research; scig; study; therapy; time; treatment; treatment burden; work
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        item: #101 of 109
          id: qrmh-9647
      author: Lorke, Mariya; Harzheim,  Laura ; Rhiem,  Kerstin ; Woopen,  Christiane ; Jünger,  Saskia 
       title: The ticking time-bomb. Health literacy in the context of genetic risk prediction in familial breast-ovarian cancer; A qualitative study
        date: 2021-10-05
       words: 10246
      flesch: 52
     summary: Understanding the genetic risk of getting ill - as a feeling, a multifaceted concept, and an individual/relational responsibility The process of understanding health risk in its differ- ent dimensions includes the individual’s feeling about risk, its familial dimension, and possible strategies to manage and control the process of risk understanding. The meaning of health risk in the context of FBOC Our study revealed the intertwining of meaning-mak- ing with respect to one’s risk and HL.
    keywords: breast; cancer; context; decision; disease; fboc; health; individual; information; life; making; process; research; risk; study; testing; women
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        item: #102 of 109
          id: qrmh-9686
      author: Balducci, Lodovico 
       title: Editor’s introduction: Qualitative research in the course of a pandemic
        date: 2021-03-24
       words: 4522
      flesch: 60
     summary: As we will see this experience is germane to the experience of health pro- fessionals caring for COVID-19 patients. He lived the epidemic as a provider and as a patient: after taking care day and night of COVID-19 patients he caught the infection himself and like Begazo he had been threatened by imminent risk of death from respiratory failure.
    keywords: care; covid-19; death; healing; health; medicine; pandemic; patients; plague; research; time
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        item: #103 of 109
          id: qrmh-9688
      author: Leccardi, Stefano 
       title: COVID-19: A learning moment for patients and health professionals
        date: 2021-03-24
       words: 7416
      flesch: 71
     summary: Like Marcel Proust has described in many occasions the eyes reveal the wholeness of the person that keeps becoming richer from life experience and that survives to the ongoing mutations of our external form. As a physician who has worked with COVID patients, and has been close to death from a COVID infection I bear witness to the les- sons I learned from this experience with my colleagues.
    keywords: care; covid; death; disease; experience; family; hospital; life; medicine; patients; time; work
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        item: #104 of 109
          id: qrmh-9689
      author: Begazo, Leo
       title: From nurse to patient: A journey to healing
        date: 2021-03-24
       words: 4211
      flesch: 72
     summary: He did not feel appropriate to admit me to the hospital however, because my condition was stable and the hospi- talization might have increased my risk of infection if I was not already infected as well as the risk of transmission to other patients if I were infected. I did trust completely my care- givers but unlike other patients I happened to know all the uncertainties they were dutybound to cover.
    keywords: care; death; family; hospital; life; nurse; patient; time
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        item: #105 of 109
          id: qrmh-9690
      author: Hernandez, Jarelys; Lubrano di Ciccone, Barbara ; Thirlwell, Sarah; Booth-Jones, Margaret ; Aslam, Sadaf; Greene, John
       title: COVID-19 pandemic causing medical and public health ethical dilemmas: A case report and review of literature
        date: 2021-03-24
       words: 5112
      flesch: 52
     summary: First, the clinician’s personal thoughts and emotions that arise during care allow them to provide ongoing ethical care for patients and families.11 Visitor re- strictions also impair communication and the bereavement process of the family. Ethical dilemmas while caring for COVID-19 patients with surgical needs and at the end of life Surgical procedures on COVID-19 patients carry high mortality,5 and providers must educate and empower pa- tients or their substitute decision-makers to make appro- priate informed decisions regarding their care, including surgical interventions and other procedures.5 Compassion and transparency are urged, particularly at the end of life,6,7 in order to avoid distrust between the patient-physi- cian relations.8
    keywords: care; carmen; case; covid-19; family; health; husband; life; medicine; pandemic; patient; research; support
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        item: #106 of 109
          id: qrmh-9700
      author: Bartesaghi, Mariaelena
       title: Editor’s introduction. Qualitative Research in Medicine and Healthcare: The (politics of) the illness experience
        date: 2021-02-25
       words: 1452
      flesch: 60
     summary: Chronic pain is, in fact, unmanage- able, and management often requires that one go on dis- ability, to have the time to devote to its management. Moving to another difficult aspect of illness, in Care workers’ experiences discussing financial issues with fami- lies facing end-of-life decisions Hopeck8 studies the ac- counts of families and care workers –nurses, patient advocates, social workers, and clergy—about how to “af- ford” terminal care for their loved ones.
    keywords: healthcare; illness; medicine; pain; research
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        item: #107 of 109
          id: qrmh-9724
      author: Behar-Horenstein, Linda S.; Richey, Joyce R.; Smith, Ukamaka Diké
       title: Assessing collaboration among team scientists within a triadic research center partnership
        date: 2021-10-05
       words: 10729
      flesch: 41
     summary: Previous evaluation studies have assessed collabora- tive processes and outcomes during the mid-term or later stages of an initiative, while Hall et al. assessed an- tecedent factors present at the outset of an initiative using indexes of collaborative readiness, along with additional measures of near-term collaborative processes that may influence the effectiveness of team collaboration over the duration of the program.12 Studies of teams, groups, or- ganizations, and management in industry and the military provide a body of evidence for effective teaming.12 Previ- ous studies of teams, undertaken in laboratories, aviation and military settings, and complex organizational envi- ronments,13-15 were guided by the input-process-outcome model of teamwork.16 Facets of collaboration such as in- dividual attitudes, information sharing, solution identifi- cation, and relationships among concepts were assessed to determine how they impact team effectiveness. Delray Beach, 33446 FL. E-mail: Lsbhoren@ufl.edu Key words: Interdisciplinary research teams; collaboration; team development; cancer health disparities training and research; eval- uation; MSI-PWI partnerships; team science; inductive analysis.
    keywords: analysis; cancer; center; collaboration; communication; core; development; effectiveness; grant; group; meetings; participants; processes; productivity; projects; research; science; team; themes; work; year
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        item: #108 of 109
          id: qrmh-9821
      author: Weston, Lauren E.; Krein, Sarah; Harrod, Molly
       title: Using observation to better understand the healthcare context
        date: 2022-01-31
       words: 11245
      flesch: 51
     summary: Observation data are documented in field notes that contain detailed information about setting, participants, and activity as- sociated with the topic of interest. Observation data can also be used throughout a study to describe processes, experiences, and areas for interven- tion, as well as to improve practice, further organizational goals, and develop context-specific interventions.
    keywords: activity; behavior; collection; data; example; field; hcp; healthcare; notes; observation; observers; participant; patient; ppe; research; room; study; training; use
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        item: #109 of 109
          id: qrmh-9977
      author: Foster, Elissa; Baglia, Jay
       title: The Difficult Case Consultation: An intervention for interprofessional health communication
        date: 2022-01-31
       words: 9735
      flesch: 45
     summary: Layout 1 Introduction A distinguishing feature of applied health communi- cation scholarship is its capacity to intervene and make a positive difference in response to “real life” problems.1 When we were invited to participate in one healthcare network’s interprofessional task force to address the issue of difficult cases in the inpatient setting, we saw an opportunity to improve outcomes for patients, health- care practitioners, and the organization. In brief, we came to understand difficult cases as those that i) include lengthy and/or costly hospital stays, ii) lead to poor or unanticipated outcomes, and iii) include complex com- munication among multiple stakeholders.
    keywords: analysis; care; case; communication; dcc; family; group; healthcare; hospital; medical; medicine; members; narrative; patient; process; reframing; research; team
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