The Process and Power of Group Therapy for Individuals with a Closed Head Injury 3 An Examination of the Impact of Participation in a Conversation Group for Individuals with a Closed Head Injury Glenn Goldblum, Marna Mulder and Alexandra von Gruenewaldt Department of Communication Pathology, University of Pretoria ABSTRACT This study describes the impact of participation in a conversational group for individuals with chronic closed head injury in the Department of Communication Pathology at the University of Pretoria over the period 1995-2000. The information was obtained through a combination of clinical observations by the writers; the examination of data from Pragmatic measures; and a Quality of Life Scale that was compiled and administered (to both the subjects and their significant others) examining the perceived effects of group therapy over time. The results showed that despite the plateauing of pragmatic competence over time, the impact of group therapy appeared to reveal itself in perceived improvements in social-communicative competence and quality of life by the subjects. Recommendation and suggestions were made for the refinement of the QOL Scale to more reliably measure the subjective perceptions of group members regarding the perceived value of group therapy. In (lddition to addressing future impliCations to move the conversation group forward, the results of the current study lead the authors to advocate the establishment of conversation groups for individuals with CHI who are suitable candidates. . INTRODUCTION "What I was, I am not. What I was I am never going to be again. " (Campbel!-Korves, 1991, p.3) ./ The dawning of the new millennium is a worthy time / to examine the proces~ of group therapy as a viable therapeutic option for !individuals with chronic closed head injury (CHI) within the changing South African context. Penn (1993)\ has emphasized the unique challenges facing the Speech-Language Therapist (SLT) working with the South African client who may be multilingual and who, Historically, may have had limited access to adequate facilities, owing to a variety of socio- political, economic and transportation factors. In the preface to her book, Elman (1999a, p. xiii) stated that "Group therapy is enjoying a renaissance" particularly given the economic constraints within which SLTs find themselves working. Similarly, in South Africa today, people are finding the lUXUry of individual therapy more and more unaffordable, and, group therapy is being advocated as a.,.,more cost-effective form of therapy. Another benefit9f group therapy in South Africa relates to the reported high client-therapist ratio (Uys & Hugo, 1997). Given this situation, it is the current writers' contention that group therapy provides a relevant, effective and economic vehicle for providing neurogenic communication treatment. Holland (in Holland & Ross, 1999, p. 116) has likewise emphasized Die Suid-Afrikaanse Tydskrifvir Kommunikasieafwykings, Vol. 48, 2001 her current belief that "individual treatment has become a useful adjunct to group treatment". Persons with CHI may potentially experience a variety of long-term residual problems that could interfere with their ability to communicate efficientiy at home and in the workplace. This may result in a diminished sense of self-esteem and self-worth that ultimately affects their ability to re-enter and remain success full y in the community. Gillis (1999) stated that one of the greatest difficulties faced by the individual with a CHI for resuming a productive and enjoyable lifestyle is poor psychosocial skills. She refers to the longstanding advocacy for group therapy by Ben-Yishay and Prigatano (1990), who believe that group interventions are necessary to address psychosocial needs. Clearly, group treatment may be seen as an ideal vehicle to address the needs of the individual with CHI owing to its inherent interactive, social and supportive components. A review of the current literature (Elman, 1999a; Elman & Bernstein-Ellis, 1999; Gillis, 1999; Holland, 2000; Holland & Beeson, 1999; Holland & Ross, 1999) reveals numerous other advantages of group therapy, including the following: A group acts as a microcosm of society (Gillis, 1999; Yalom, cited by Adair Ewing, 1999), creating a safe, non-threatening environment where relevant issues and cognitive-communicative deficits are dealt with. In addition, group therapy promotes interaction and interdependence among R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) Glenn Goldblum, Marna Mulder & Alexandra von Gruenewaldt 4 members, which Adair Ewing (1999) has identified as a crucial component in facilitating much of the progress that takes place by the group members. Furthermore, the group environment provides a wider array of communication partners, and the opportunity to practise a range of pragmatic skills across contexts, thereby facilitating generalization to natural environments. In addition, opportunities are provided for the members to address self-awareness, monitoring, self-regulation, initiation and other important executive skills (Ehrlich & Sipes, 1985; Elman & Bernstein-Ellis, 1999; Gillis, 1999; Wilcox & Davis cited by Elman, 1999b). Daniels-Zide & Ben-Yishay (2000, p.l92) have likewise advocated the concept of a group being an "ordered environment" where increased awareness and acceptance of disabilities facilitates a return to a life that is nevertheless meaningful. Ylvisaker and Feeney's (2000) use of collaborative projects in groups comprising individuals with CHI has been shown to be effective in assisting these individuals to deal with the diverse challenges following CHI. In addition to the benefits of group collaboration reported by Ylvisaker and Feeney, they note the value of engaging these individuals in group projects as expert contributors. When further examining the potential benefits of group therapy, Kagan's (1998) concept of increased communicative confidence and participation in life is considered as being centrally important. The sense of empowerment and advocacy generated by group participation has also been acknowledged by Kagan (2001), who in 2000 joined with a number of her colleagues to form the Life Participation Approach to Aphasia (LPAA) Project Group (Chapey et.al., 2000). This group has put together a statement of values that they believe should guide assessment, therapy and research of the individual with aphasia. They advocate the empowerment of the individual to facilitate their more rapid return to active life, thereby reducing the long-term costs for the individual and society. The current writers believe that these values have equal application to intervention with individuals with CHI. Kagan's work (1998, 2001) is closely complimentary to that of Lyon et al. (1997, p. 695) where enhanced communicative competence is considered to result in a restored sense of self, "strengthening a more active, self- determined and controlled role in daily life." This thinking ties in with the earlier writings of Prutting (1982) who emphasised the role of one's social identity in relation to one's communicative and linguistic competence. Sarno (1997, p.676) advocated the move towards developing models and methodologies for empowering clients to become "consumers and advocates for themselves." This process has been conceptualised by Samo (1997, p.676) as improved quality of life for the individual, which she described as "an emerging and important rehabilitation issue." It incorporates parameters such as independence in communication, life status and coping skills. The above philosophy falls within the Social Disability Model, referred to by Coles and Eales (1999), reflecting a shift away from focusing on the impairment to empowering the disabled individual and their significant others to coping with the restrictions they may face. The World Health Organisation's 1980 classification of consequences of disease has also recently been revised into the ICIDH-2 (1998) (Lux, 1999), now called the International Classification of Functioning, Disability and Health. It sets out three interactive levels of functioning namely: Impairments, Activities and Participations. Group therapy appears to target these levels of functioning with particular emphasis on the latter two levels. . A review of the literature reveals a surPrising lack of empirical research into the value and outcomes of group therapy for individuals with CHI. Elman (1999b), Elman and Bernstein-Ellis (1999) and Kearns (1994) have stressed the need for further research to validate group therapy - particularly within the economic climate in which therapists find themselves working today. Garrett (1999) has likewise urged clinicians to develop and standardise useful outcome measurement tools, as well as to report on the changes in communication status for individuals participating in group therapy programs. Furthermore, this attitude reflects the recommendation of the LPAA Project. Group (Chapey et aI., 2000) for clinicians to re-define their clinical and research efforts to facilitate the increased life participation of individuals with aphasia. The current writers would like to extend this invitation to the realm of rehabilitating individuals with CHI within a group context. Based on the· need for further data, this article describes the observations made by the writers of the apparent impact of participation in a conversational group over time for individuals with CHI, together with the group members' and their significant others' perceptions of group therapy. METHOD MAIN AIM OF STUDY The main aim of the study was to describe the overall impact of participation in a conversation group (CG) for individuals with chronic CHI in the Department of Communication Pathology at the University of Pretoria (UP). Sub-aims of study To provide a historical overview of the CG from 1995-2000, highlighting the different phases through which the group has evolved over this time period. I To describe the changes occurring in the pragmatic skills of each individual subject. To describe the compilation and application of a QOL Scale examining the subjects and their significant others' perception of the role played by the CG in quality of life and social-communicative competence. To describe and compare the results reported on the QOL Scale by the subjects and their significant others. To make recommendations regarding the refinement of the scale that was used in the study. RESEARCH DESIGN In this study, both qualitative and quantitative research data gathering and data analysis procedures were used. Data was gathered and documented qualitatively by means of non-systematic clinical observations over six years since the inception of the CG The South African Journal of Communication Disorders, Vol 48 2001 R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) The Process and Power of Group Therapy for Individuals with a Closed Head Injury 5 in 1995. These observations were made annually by the first writer of this paper (who has been involved with the running of the CG since its inception), together with student group facilitators working with the group members for a year at a time. The data from these observations were then examined retrospectively and cumulatively by the current writers. The administration of a scaled questionnaire reflects the use of a quantitative data collection procedure, as attempts were made to quantify the perceptions of the group members and their significant others with regard to the effects of group therapy. A scale 3.l10ws for fairly accurate assessment of the beliefs and opinions of individuals as opinions and beliefs are often thought of in terms of graduations (McMillan & Schumacher, 2001). HISTORICAL OVERVIEW OF THE CG Phases through which the CG has evolved The CG for individuals with CHI was established in 1995. Since its inception, the group has functioned as an open group in order to accommodate the movement of members in and out of the group. There has, however, been a core of people who have remained members since its inception and who have ensured its continued development. Thus, although the addition of a new member changes the dynamics of the group, this has not been found to revert the group back to its initial stages of group development. ' Each year two final-year SL T students act as group facilitators under the guidance of the ·first writer of this paper, who was responsible for starting the group in 1995. The group consists of both English and Afrikaans speakers and both languages are spoken interchangeably during the group meetings. The group meets once a week for an hour-and-a-half in the Speech and Hearing Clinic of the' UP in a one-way mirror room for student training purposes. Since the Speech and Hearing Clinic is part of the UP, the group run~ according to the University timetable. I / Data on the group process was gathered by means of / non-systematic clinical observation over several years. In retrospect, the applicati6n/ of Tuckman's framework (cited by Adair Ewing, 11999) for conceptualising the formation and ongoing development of group process is useful. Table 1 reflects i the CG's process within this framework from 1995 to 1 2000. Tuckman has divided group development into fow useful stages, namely forming, storming, no~ng and performing. The forming stage usually occurs over the first few sessions. Here introductions are made which set the .tone for the future sessions. During the storming stage, agreements and ways of operating within the group are ,set. It is at this time that conflicts may arise, creating a dynamic in which certain members take the lead and otpers follow. It is also at this time that individual personalities create the group personality. During the norming stage, rules are used to govern the group, and it is at this stage that the ground rules were established in the CG. The performing stage is characterised by increased cohesiveness and co-operation of the group members as a unit. Members may also be noted to adopt lifelo~g changes during this final stage. . Die Suid-Afrikaanse Tydskrifvir Kommunikasieafwykings, Vol. 48, 2001 Group members Table 2, displays the demographic features of the CG members, both past and present, since the inception of the group in 1995 until 2000. Note should be taken that only four of the 21 group members are female. Furthermore, only two of the group members (D & T) had a stroke, while the remaining group members sustained a CHI at some point over the period 1986 to 2000. Member D was included in this group since its inception, as he reportedly felt more comfortable in the CG than in the conversation group for individuals with Aphasia (running concurrently in the same Department) which, at the time, comprised mostly elderly women. He has enjoyed the status of "honorary member" of the CG and has been a valuable asset to the group ever since. It is apparent that younger individuals with Aphasia are keen to join the CG for individuals with CHI rather than the group for individuals with Aphasia, as the former group comprises younger members. For this reason, Member T joined the CG in 2000. Members T and D were not included in this study, as the current study was concerned with individuals with CHI only. Table 3, shows the duration of group participation by each member, as well as the reasons for their leaving the group over the time period of 1995 to 2000. Examination of Tables 2 and 3 reveals the following: • Over the period of 1995 to 2000 there has been a total of 19 group members with CHI, and two with Aphasia, with an average 6 to 8 group members at anyone time. Despite the movement of individual members in and out of the group, it is clear that a core group of members (B, C, & D) have participated continuously since 1995. • The duration of coma ranges from no loss of consciousness to 7 months. • The education levels at the time of injury ranges from scholar to tertiary-level education. Five of the seven members who have participated in the group for two years or longer were in the process of completing their tertiary education, or had already graduated at the time of their injury. • Age at joining the group ranges from 20 to 46 years, with an average age of all the members being 27 years. For the individuals with a CHI, the average age was 26 years. • Duration of group therapy participation ranged from as little as 6 months to 6 years and ongoing. • Reasons for members leaving the group included: obtaining jobs and starting their own business; returning to full-time studies in another province, or lectures clashing with the group meetings. Other reasons included a lack of motivation to continue participating in the group, a desire to focus on individual therapy as well as Member I's mother deciding that he was not coping in the group. • Current education and employment status ranged from: five students (only taking one or two subjects per year in order to manage the completion of the degree) to three self-employed group members. Three group members had part-time jobs which appeared to be unstable and constantly changing. Ten of the members were unemployed and are receiving disability pension. R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) Glenn Goldblum, Marna Mulder & Alexandra von Gruenewaldt 6 Table 1. Evolution of the CG functioning based on stages of Tuckman (cited by Adair-Ewing, 1999) DATE 1995 1996 1997 1998 1999 2000 MEMBERS A,B,C&D B,C,D&E B, C, D; F, G, H,I, J & K B, C, D, F, I, J,K,L&M B, C, D, K, L,M,N&O B, C, D, J, K, M, P, Q, R,S, T&U GROUP FUNCTIONING Forming stage: Group had pragmatic emphasis. Group sessions structured: focused on individual cognitive-conimunicative needs. Themes discussed: organisation & planning, decision-making, establishing priorities, developing insight, considering the views of others & flexible thinking. Cognitive-communicative functions (e.g. short-term & long- term memory) and their management also discussed. Goals established for following year: paying more attention to social skills, conflict management, self-acceptance & acceptance of others, improving self-confidence, & assertiveness without aggression. Group thus moving into StorminJ! staJ!e. Storming stage: Above-mentioned themes discussed. Additional themes: concepts of independence, loneliness & establishment of trust with student facilitators. Meetings structured & focused, but group members began moving away from confines of clinic setting. Regular outings to local coffee shops & ·to nearby bird sanctuary. Group members compiled letters to raise public awareness regarding CHI, which were made available to hospitals, clinics & doctors. Poster concerning group therapy made & was displayed at local hospitals. Storming stage: Needs-assessment implemented. Group members decided on speCific discussion topics, outings into community, & on format of Open Evening for dissemination of information to family members & to public (to become an annual event). Norming stage: Ground rules (a constitution) established for first time by members (under guidance of student facilitators) to navigate group activities & behaviour throughout year. Ground rules still revised & updated at beginning of each year & include: ''freedom to disagree, keeping to a topic, giving each member a chance to speak, active listening, being sensitive to non-verbal cues, not interrupting & monitoring both yourself & others according to these rules". This fostered foundation of mUtual trust & respect among group members & facilitators. Members also planned visits & outings, watched thought-provoking videos & discussed topics established by needs-assessment. Also decided that new student facilitators taking over group the following year be introduced to group earlier on to facilitate smoother transition. Goals & emphasis shifted from being pragmatically focused within group context, to empowering group members into becoming confident advocates of CHI within broader community. This is reflected by formulation of community projects starting in 1997 & ongoing, aiming to educate public about CHI. First Open Evening held for family members and public to share personal experiences & respective roads to recovery. Organization & format of open evening continues to be planned annually during group meetings. Members given responsibility to prepare for talk, & to advertise event by e.g. contacting local press. Increase in cohesiveness & teamwork in working towards a common goal reflects Performing stage. Performing stage: Characteristic feature of 1998 was implementation of community service project and regular outings. During needs-assessment members expressed need to move beyond clinic confines into community to disseminate information reo CHI. Various local high schools visited, raising awareness among adolescent school-going population regarding causes & nature of CHI. Group members formulated personalised speeches about CHI. Another project initiated in 1998 & expanded in 1999: working as a team to compile bilingual information pamphlet (in English & Afrikaans) about CHI. Pamphlet made available at schools & to general public during Open Evening. At end of 1998, preliminary self-rating scale developed to determine value of group to members. Performing stage: Main project: expansion of pamphlet on CHI compiled in 1998. Tips to facilitate communication with people with CHI during acute & chronic stages of recovery were added. Members planned to visit schools (as in 1998). Members benefited by meeting & interacting with Headway (s,upport group for individuals with CHI) in Johannesburg. Self-rating Scale refined into a Quality of Life Scale administered to both group members and their significant others to determine impact of group on their quality of life. Performing stage: Group effort to educate public by trying to find sponsorships for group pamphlet, & other endeavours e.g. key rings, mugs & mouse pads for dissemination of information. No sponsorships found, but learning facilitated. Group member J instrumental in co-ordinating formation of' National Lobby Group for individuals with brain injury. Group members shared ideas with him, ,& attended launch of organisation. Outings into community, & opportunities to practice improved interpersonal skills. Open Evening more ambitious than before. Group members used role-playing to share information with general public re living with a CHI. Larger venue used on University campus with biggest turnout to date. / The South African Journal of Communication Disorders, Vol 48 2001 R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) t:::: ~. Vl :0::: ~ ~ .... §' I:l a '" ...., ,<' I:l.. "" ~ ... ~ '" :::; i :0::: ;::s §' '" ;;;. ~ ~ ~. ~ ,... ~ N 8 ...... Member A B C D E F G H I J K L M N 0 P Q R S T U Date of accident 1992 1986 1992 Stroke-1987 1995 1996 - 1996 1996 1995 1995 1993 1995 1996 1998 1999 1995 1988 2000 1995 Stroke - 2000 1998 Duration of Educational level & coma Employment Status at time of injury 21 days --. -----.- Matric 7 months Scholar - Matric. 18 days B Com Student 2-3 days B.Com Accountancy Financial Manager 2 months Std 8 14 days Std 9, Computer courses 8 weeks Matric. Working on Uncle's farm before commencing army service. 4 months Std 7 and Level 5 at Technical College. 1 month Technical College. Working as electrician on a contract basis. 42 days MBA 21 days Matric. Computer Programmer in Police force. 21 days B. Eng. (Ind.) 21 days National Higher Diploma 21 days Mechanical Engineering II Student 3 months BA I Student, Si~n Language Course 12 days Matric. 6 Months of Graphic Design Diploma. 2 Y2 months B.A. Psychology III student 26 days Financial information systems at Technikon. Worked in computer industry. 3 weeks BSc (QS). Worked as Quantity Surveyor at the Post Office. ? Degree in Industrial Psychology, working full-time for a car-manufacturing company 6 weeks B.Com Accountancy II student --3 --3 Il' =-~ ~ ~ ., ~ Q r') Age at joining Current Educational & Employment the group status (2000) 20 years Self-employed-"odd lobs". 0 ~ '" e '" Il' ~ = ., c. ~ ~ =- ~ ... ~ r') ., 26 years Full-time Student BA III (Taking one or two subjects at a time). 26 years Unemployed. Disability pension. 46 years Unemployed. Disability pension. 25 years Self-employed; building machines. 20 years Constantly changing employment in a part- time assistant-rece@onist capacity. 21 years Part-time apprentice motor mechanic. 24 years Unemployed. Disability pension. 24 years Unemployed. Disability pension. 33 years Self-employed. Currently the chairperson of National Lobby Group for Brain Injury. 31 years Unemployed. Disability pension. ;- Q Il' ..... a- C':l ., ., ~ Q = a. '0 ~ --3 =- ~ ~ n ., Q ~ ~ '< ~ 8" ;;l ., Il' !;" ~ Q C. = ... < C':l c: ., = ~ Il' [i;" '0 :i. ~ .... =- 29 years Unemployed. Disability pension. 35 years Unemployed. Disability pension. e Il' ~ n ~ ;;l Q '" 21 years Full-time student, changing direction of studies to BA Information Science. 20 years Full-time student, continuing studies. 23 years Unemployed. Disability pension. 33 years Completed Degree Obtained a RED & currently a ::j' ~ Q C. e ::= .... ~ Il' ~ C. ~ U1 ..... , .: t-J =' g ~ student doing a Diploma in Trauma Debriefing. Q 23 years Unemployed. Disability pension. 32 years Full-time student, second year correspondence course in Accountancy at Technikon SA. 37 years Unemployed. Disability pension. 23 years Self-employed. Vending machine business. -.J R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) ;;1 ~ ~ ;: s- ~ ... 2' ;:: ~ ;: 3 ~ : Wi"''' ~. ./ ./ ./ ./ ; <:;::'",',. ,w. D ' ./ ./ ./ ./ E 6 months F ./ 6 months G ./ H ./ I 6 6 months months ./ ./ " " ./ ./ ,,' ./ .x., N 0 p Q R S T U' C./ I Participation in Conversation Group ... Group members who participatedin'study ~ '= :~ "~ ;. ... ' Reason for leaving the group 'i' ~ ... 1999 2000 -. § Got engaged and found a job as a sports-trainer. Q .... ./ ./ JQ .., ./ ./ Q = ./ ./ ~ ~ = Needed individual therapy. .., ... n' i :C. Left to work full-time as an office assistant. I = ... s· ? Needed to move on and lived far away. Lack of motivation. Currently plans to return . Mother decided member wasn't coping in the group , = = Q. ~ ~ = CIl ;- § is CIl ./ Moved on to start own business, but is still in contact with the 8' ~ .., e. group. ./ ./ ./ No longer motivated. ./ ./ ./ Returned to full-time studies in the Cape. ./ Returned to full-time studies. Felt more competent, and that no longer belonged in the group. ./ ./ ./ ./ i Q. c::r < = ~. F ... :: =-~ = (i ::I § = < :: ~ i = s:: ... ~ s· .., = Ro ~ > .., ;- Q = ~ 'C = = ./ ./ =i' Q. 9 .., = < ... Q Ie = Ie ~ (J) I 2 N ~ = = = ~ = ~ s:: ... 00 R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) The Process and Power of Group Therapy for Individuals with a Closed Head Injury 9 Group goals The main goals of the CG had been to improve the group members' pragmatic skills and quality of life by: • Providing the opportunity for group members to improve, plan, implement and monitor the use of functional, compensatory communication strategies and appropriate conversational rules for the generalization of these skills outside the group setting. • Facilitating the adjustment to, and acceptance of, functional cognitive-communicative deficits and their impact on interactions with other people. • Instilling a sense of empowerment within the group members to take responsibility and control of their daily lives, as well as reaching out to the general community to become advocates for individuals with CHI. DATA COLLECTION Subjects Only those members who had sustained a CHI and who have attended the CG for two years or more (Members B, C, J, K, L & M) were included in this study. Owing to the fact that the Pragmatic Protocol was administered to the group members bi-annually, a minimum period of two years of participation in the group was selected as a cut-off period to ensure that there would be enough data for comparative purposes. The group members who participated in the current study are referred to henceforth as Subjects B, C, J, K, L & M. The nature of the study was explained to those group members who were selected as subjects, and their verbal agreement to participate in the study was obtained. Assurance was given that their identity would' remain anonymous at all times. Materials for Data Collection ,// . / Pragmatic Protocol (Prutting and Kirchner, 1987) I The Pragmatic Protodol was selected as a means for data collection as it w~s designed to' be used while observing individuals; engaged In spontaneous conversation during ! unstructured communicative interactions (Prutting, Kitchn<;!r, Hassan & Buen, 1984 in Binder, 1984). It is a societal appraisal rather than a clinical test, where cognizance is taken of how society will view the individual's communicative behaviour. Thus, a behaviour may be incorrect, but not necessarily judged as inappropriate by society (Prutting in Binder, 1984). The Pragmatic Protocol comprises 30 pragmatic behaviours that are rated as appropriate or inappropriate based on societal perceptions. This pool of behaviour is known to be developed and used appropriately by children entering school, adolescents and adults, and together comprise an individual's communicative and social competence (Binder, 1984). The communicative competence of each group participant was rated as a percentage of the number of appropriate pragmatic behaviours within each of the three pragmatic domains - namely: Verbal, Paralinguistic and Non-Verbal. Die Suid-Afrikaanse Tydskrifvir Kommunikasieafwykings, Vol. 48, 200J Quality of Life Scale The results obtained from the Pragmatic Protocol did not sufficiently reflect the nature and quality of ongoing changes and subjective improvements that were apparent to both the group facilitators and the subjects themselves. Their apparent increased self-esteem and enhanced participation in life (Chapey et. aI., 2000; Holland, 2000; Kagan, 2001) needed to be rated more effectively. Schuessler, Fisher & Draper (cited by Sarno, 1997) have identified the challenges inherent in measuring quality of life since it is not easily observable. Sarno has suggested that of all the measures of quality of life, self-report (including interviews, questionnaires and rating scales) is the most frequently used measurement technique. Given the apparent paucity of suitable scales available to date to assess these apparent quality of life changes, the current writers. developed a preliminary Self-Rating Scale in 1998 on which individual subjects could rate dimensions of their quality of life. During 1999, this was further developed into the Quality of Life (QOL) Scale (Appendix A). This scale emerged from an examination of available literature regarding quality of life measurements (Ehrlich & Sipes, 1985; Laman & Lankhorst, 1994; Penn, 1998) and dimensions of the revised classification of the World Health Organization, the ICIDH-2 (Lux, 1999). In addition, personal communication with various authorities including Alant, (1998), Holland, (1998), and Kagan, (1999), assisted in the formulation of the QOL Scale. This QOL Scale was designed to determine the perceived effect of group therapy on the quality of life and social-communicative competence of each subject. A similar scale, namely the QOL Scale: Perception of Significant Other was compiled for the significant others of the subject to complete. The scale was identical to the QOL Scale given to the subjects, with only the wording adapted to target the significant other. While perception is a personal and subjective experience, the current writers decided to include observation of the subjects' significant others in order to gain further information of the subjects' level of functioning beyond the confines of the CG setting. Description of the QOL Scales • Both QOL Scales comprise ten questions and are presented in Appendix A. • The first and last questions of the QOL Scales are open-ended, requiring the subjects and their significant others to provide reasons why the subjects joined the group, and to describe what the CG has come to mean to them. • The remaining eight questions require the subjects and their significant others to rate their respective perception of quality of life and various social- communicative competencies on a self-anchored rating scale (Fouche, 1998) from 1 to 10 (I-poor, 5- average, lO-very good). These competencies include communication skills, self-image, assertiveness and advocacy regarding CHI, participation in every day life, decision-making, overall self-acceptance specifically, as well as acceptance by society generally. In compiling this scale, attempts were made to incorporate the three R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) Glenn Goldblum, Marna Mulder & Alexandra von Gruenewaldt 10 interactive levels of functioning of the ICIDH-2 (1998) (Lux, 1999) - namely Impairments, Activities and Participations. Question 2 reflects the Impairment level; while Questions 4, 5 and 7 examine the Activities level, and Questions 3, 6, 8 and 9 reflect the Participation level. • The QOL Scale incorporates three time dimensions. The subjects and their significant others were requested to rate their perceptions of quality of life and various social-communicative competencies as they were after the CHI was sustained (but prior to enrolment with the CG), as they were at the time of completing the QOL Scale, and how they are expected to be with future participation in the CG. Procedures for Data Collection Administration of the Pragmatic Protocol (Prutting & Kirchner, 1987) The Pragmatic Protocol has been used by'the student facilitators since 1996 to rate the pragmatic skills of each individual subject at the beginning and the end of each year that they attended the group. The Pragmatic Protocols were completed independently of the subjects, and were considered to reflect valid perceptions of the subjects' communicative competence over these two time periods in a year. Each Pragmatic Protocol was examined by the first writer of this article over the entire period (1996 to 2000) to ensure inter-rater reliability. Any differences in ratings between the first writer and the student group facilitators were resolved through discussion. The number of Pragmatic Protocols administered to each subject depended on the year in which they joined the group. Owing to the fact that a minimum of two years' participation in the group was selected as a cut off period for inclusion in 'this study, each subj'ect in this study had a minimum of four completed Pragmatic Protocols. Administration of the Quality of Life Scale Towards the end of 1999, the QOL Scale was handed to each subject to complete themselves (with the assistance of the group facilitators where necessary). The QOL Scale: Perception of Significant Other was sent home with each subject for their significap.t other to complete with a cover letter explaining its aim and nature. Each subject was asked to rate their perceptions of their own social-communicative competencies and' quality of life as they were before joining the group (after sustaining the CHI), currently and into the future with ongoing group participation. Each subject's significant other was likewise asked to rate their perceptions of the family member or friend with a CHI along the same dimensions. . . Procedures for Data Analysis Analysis of the Pragmatic Protocol The Pragmatic Protocol was examined by converting into percentages, each subject's pragmatic score (obtained for each year that the Pragmatic Protocol was administered) for the three pragmatic domains (namely: ~erbal; Paralinguistic and Non-Verbal aspects). Since Prutting and Kirchner (1987) theoretically divided the Pragmatic Protocol into these three specific domains, it was decided to examine these areas independently as opposed to an overall percentage pragmatic competence. For the purposes of comparison, these results are presented in bar graph format (See Figures 1, 2 and 3). Analysis of the Quality of Life Scale The results of the subject's ratings on the,eight scaled questions were totalled, and a score was obtained out of 80 which was then converted into a percentage. This procedure was followed for their ratings over three time periods, namely: before joining the group (after sustaining a CHI), current perceptions and future expectations. The results for each of these three time periods are presented on the same graph for each subject to facilitate comparison of changed perceptions over time. The responses made by the subjects to the two open-ended questions are discussed qualitatively. The same procedure was followed for the scales completed by the significant others. The ratings by the subjects and their significant others are presented on separate bar graphs, but will be discussed with reference to each other (See Figures 4 and 5). PRAGMATIC PROTOCOL Verbal Aspects The percentages obtained by each subject for this pragmatic domain are presented in Figure 1. Examination of Figure 1 shows the improvements made over the years in the verbal domain of pragmatics by four of the six subjects. Closer examination of these results reveal improvements in for example, topic selection and maintenance by Subject C; improved repair and revision and topic introduction by Subject L; and fewer interruptions by Subject K. CG therapy addresses verbal pragmatic aspects directly as group members are referred to the ground rules regularly. These ground rules encourage, among others, keeping to the topic, active listening, being sensitive to non-verbal cues and not interrupting. The improvements noted in these! four subjects' verbal pragmatic skills may therefore be as~ribed to participation in the CG. An explanation for the lack of change in SUbject B's verbal pragmatics may be that he had his accident 14 years ago, in contrast to the pther subjects whose accidents were more recent. He received many years of individual cognitive-based Speech Thekapy, and by the time he joined the CG, his verbal skills appear to have reached a plateau. Subject J's verbal pragmatic skills were consistently fully appropriate since he joined the CG. Paralinguistic Aspects The results of this pragmatic domain are presented in Figure 2 . Examination of Figure 2 reveals improvements in only Subject M, whose paralinguistic skills appeared to improve with increased confidence. On first joining the group, he was very quiet and withdrawn, speaking softly and relatively unintelligibly. Over' time, his confidence appeared to grow and with it, a concomitant increase in intelligibility of speech. The overall minimal improvements in the CG subjects' Paralinguistic pragmatic The South African Journal of Communication Disorders, Vol 48 2001 R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) · The Process and Power of Group Therapy for Individuals with a Closed Head Injury 100 80 Q) C1) 60 lS !::: Q) 8 40 Q) 0.. 20 0 Participants Figure 1: Percentage Appropriate behaviours on the Verbal dormin . of the Pragrmtic Protocol (Prutting & Kirchner, 1987) over the period B C J K L M Participants Figure 2: Percentage Appropriate behaviours on the Paralinguistic domain of the Pragmatic Protocol (Prutting & ~1996 Eil1997 1111998 111999 .2000 11 behaviours were not unexpe~ted. Paralinguistic aspects reflect the dysarthric qualitYj of many of the subjects' spee~h (in particular, Subje9ts B, J and L), which have remamed stable several years after the CHI and are not directly addressed in CG th~rapy (with the exception of occasional reminding for relevant subjects to speak more I t slowly). It is interesting to note that Subjects B and J (who were the most severely penalised in this pragmatic domain), were rated as the most appropriate in the Verbal pragmatic domain, highlighting the disc'reteness of the three pragmatic domains defined on the Pragmatic Protocol. (See Figure 1). I 10d, ............ . ' -- ............. ---.. -- ............................ -.- _ .................... , , 80 Q) CI J!! 60 c:: ~ Q) 40 Q. 20 o B c J K L M Participants Figure 3: Percentage Appropriate behaviours on the Non-Verbal dormin of the Pragrmtic Protocol (Prutting & Kirchner, 1987) ov~r the period 1996-2000. Die Suid-Afrikaanse Tydskrijvir Kommunikasieafwykings, Vol. 48, 2001 ~1996 flillI1997 1111998 1111999 .2000 R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) Glenn Goldblum, Marna Mulder & Alexandra von Gruenewaldt 12 Non-Verbal pragmatic behaviours may potentially powerfully intrude upon ones' perceived communicative competence. CG therapy is able to address selected non- verbal aspects such as physical proximity, physical contact, facial expression and eye gaze. Other non-verbal behaviours such as body posture, footJIeg and hand/arm movements and facial expression may reflect physical injuries sustained during the accident and may therefore be resistant or potentially more complicated to change. This may explain the limited overall improvement noted in the subjects' non-verbal domains. Examination of Figure 3 reveals that only selective gains were made by two of the subjects whose non-verbal pragmatic behaviours were specifically addressed within the CG context. For example, Subject C's attention was drawn to improving eye gaze, facial expression and physical proximity. He responded well, and in so doing, became a more appropriate conversational partner. In summary, the above-described results of the Pragmatic Protocol reflect the emphasis placed on certain pragmatic aspects within CG therapy. Because CG therapy inherently focuses on the interactive, conversational and social components; more attention is placed on verbal aspects, with attention to Non-Verbal and Paralinguistic 100 90 80 70 ~ ~ 60 ell -= 50 ~ IJ '"' 40 ~ 30 20 10 0 8 C J K aspects only where relevant. This may explain why more improvements were noted in the Verbal pragmatic domain, than in the Paralinguistic and Non-Verbal domains. Given the limited overall improvements reflected by the Pragmatic Protocol, the group facilitators felt that these results did not sufficiently reflect the subjective improvements that were apparent in the form of improved self-confidence, and the desire to become advocates for individuals with brain injury generally. For example, Subjects Band J showed no and little pragmatic improvement respectively. Despite this, they were the two CG subjects who demonstrated the most notable leadership and advocacy qualities. Subject B regularly contacts the press about a range of issues related to public education and brain injury. Subject J has played a major role in the formation of a National Lobby Group for individuals with Brain Injury. These observations confirmed the need to develop the QOL .Scale as another means of documenting the changes noted in individuals with CHI participating in group therapy over time. QUALITY OF LIFE SCALE Results of Subjects' Rated Questions L M D Before joining the group ~ Curren t Perceptions • Future Expectations Participants Figure 4: Quality of Life Questionnaire: Subjects' Perceptions of their Social-Communicative Competencies and Quality of Life over three time periods. Examination of Figure 4 above reveals that all subjects, with the exception of Subject C, showed that they perceived consistent improvements of their own performance on parameters of quality of life and social- communicative competencies (including self-esteem, assertiveness, increased life participation, and advocacy) from before joining the group, to present level of functioning. For example, Subject B indicated a 50% improvement in his quality of life and social- communicative competencies from before joining the CG to the present. This subjective feeling of wellbeing may have motivated him to have sufficient confidence to become an advocate for individuals .~ith brain injury. In contrast to the other CG subjects, Subject C does not feel that he has benefited from CG therapy. Despite this, he has continued to attend CG Therapy since its inception in 1995, and has indicated that he believes he will benefit from ongoing participation in the CG. His predictions that he will benefit from future participation (despite his current perception of not having improved since joining the,group) may be due to the social and interactive components of the group. Alternatively, he may be optimistic that he may ultimately benefit from the ongoing 9hanges' and concomitant challenges that take place in tI{e group format and structure from year to year. Brown, Gordon and Haddad (2000) maintained that quality of life resides solely in the target person's judgement"and feelings. Given this, the most important implication of Subject C's results is that he anticipates improved social-communicative skills The South African Journal of Communication Disorders, Vol 48 2001 R ep ro du ce d b y Sa bi ne t G at ew ay u nd er li ce nc e gr an te d by th e P ub lis he r ( da te d 20 12 ) The Process and Power of Group Therapy for Individuals with a Closed Head Injury 13 and quality of life with continued participation in the group. It is interesting to note that Subject J (who is considered by the current writers to be functioning at a higher cognitive level than the other subjects) rated his quality of life and social--communicative competencies as lower as compared with the other subjects. This may reveal that awareness and insight into his deficits may have made him more 'self-critical. Talbot and Giroux (2000) has likewise noted that individuals with milder CHI rated their quality of life poorer than those with more severe CHI. In addition, examination of Subject 1's performance on the Pragmatic Protocol reveals that he was severely penalized on the Paraling~istic domain, reflecting' the dysarthric component of his speech. His ,sensitivity to listener's reactions and penalty when he talks may well be reflected in his lower ratings of his quality of life and social- communicative competencies. : In summary, in contrast to the minimal pragmatic gains made by the subjects, the improvements noted, on the ratings on the QOL Scale were considered to highlight the 100 90 80 70